Ibuprofen dosage

[Nita]

Someone posted earlier that 600 mg dosage helps brain swelling. I did give this dosage to my son and his OCD went down, but when I asked Dr. K. (he had a second IVIG with him 2 weeks ago) he said to be careful with Ibuprofen as it can cause liver damage. Does anyone know how long I can give him this dose safely? I am trying to wean him off Klonopin (per Dr. K.'s advice as he feels it may be causing some of his anger episodes) and the Ibuprofen dose seems to calm him as well . I was thinking of giving him the Ibuprofen for a few weeks until he is weaned off Klonopin and hopefully, IVIG kicks in better. Right now I am seeing some improvement from IVIG, with one amazing day, but also ups and downs. Dr. K. is also suggesting a change of his OCD medication as it doesn't seem to be doing much good. He switched from Luvox (which had the side effect of anger and increased ADHD) to Cymbalta, a SNRI. It just doesn't seem to effect the OCD that much though. He sees a new psychiatrist Monday. What brands of SSRIs are working for you PANDAS kids?

[thereishope]

About Ibuprofen (IB), the dosage depends on weight. How much does she weigh? Also, I always try to to do the minimum and try to space it out as much as I can. Did you try a lower dose first?

 

How often I gave it to my son varied. There were times, IB didn't work, there were times I gave it every 6 hours, there were times he only needed it once in the morning.

[Nita]

My boy weighs 150 lbs. (was 160 a month ago and 130 2 months ago - he gained 30 pounds in 4 weeks on Risperdal which did nothing for his anger). Good idea to see how the day is going before giving. I tried 400 mg. one time and it ddn't seem to do much.

 

 

About Ibuprofen (IB), the dosage depends on weight. How much does she weigh? Also, I always try to to do the minimum and try to space it out as much as I can. Did you try a lower dose first?

 

How often I gave it to my son varied. There were times, IB didn't work, there were times I gave it every 6 hours, there were times he only needed it once in the morning.

[thereishope]

Yes, he's the weight of an adult so you can follow the dosing on the package. When he takes the 600mg....do you see it wearing off before you give more or are you just giving it around the clock even if you do not see an increase in PANDAS symptoms?

 

I found my son did need it in the morning. Each kid seems to have different times in the day when the symptoms are worse.

 

If you give the 600mg now, then you can always "test" it in a week at a lower dose. Perhaps, over time, he will need less. Unfortunately, the only way to find out is to try.

Edited April 3, 2010 by Vickie

[pathfinder]

Someone posted earlier that 600 mg dosage helps brain swelling. I did give this dosage to my son and his OCD went down, but when I asked Dr. K. (he had a second IVIG with him 2 weeks ago) he said to be careful with Ibuprofen as it can cause liver damage. Does anyone know how long I can give him this dose safely? I am trying to wean him off Klonopin (per Dr. K.'s advice as he feels it may be causing some of his anger episodes) and the Ibuprofen dose seems to calm him as well . I was thinking of giving him the Ibuprofen for a few weeks until he is weaned off Klonopin and hopefully, IVIG kicks in better. Right now I am seeing some improvement from IVIG, with one amazing day, but also ups and downs. Dr. K. is also suggesting a change of his OCD medication as it doesn't seem to be doing much good. He switched from Luvox (which had the side effect of anger and increased ADHD) to Cymbalta, a SNRI. It just doesn't seem to effect the OCD that much though. He sees a new psychiatrist Monday. What brands of SSRIs are working for you PANDAS kids?

 

trial and error for every kid reacts differently do these type of drugs.

prozac worked like wonders for 5 months before it went down the hill with horrible side effects

celexa did not do anything

paxil worked very well( in fact it was best ssri to my son's ocd symptom, was very happy for a year but rage began to crept in around age 13, 7th grade---I suspect it was from hormone as well) discontinued because paxil cannot be used with other med.

zoloft-----began this med when abilify was added to address my son's rage, odd symptom.

strattera made my son 10 times worse with his ocd

risperadal made my son very angry

abilfy made my son gain a lot of weight and made him very sleepy even at a very low dose. I would give him 3-6 mg every night and he still fall asleep in his class room the next day even with help of concerta. very very powerful med.

 

I am not against medicating a child if she or he needs. ( if there is anybody who talks against this type of med, she does not have a child like mine.)

But I advise you to be on guard. Psychiatrist can not just come up with a medication that are not there to begin with. He could only treat your child with what is available in medication pool. Pandas or not, Dr. could only address its symptom as it is like any other ocd or odd symptom.

Educate yourself about these meds and make a chart ( food, vitamins, med, illness---stressful events).

Difference between pandas child from other child with same symptom would be pandas child is involved with strep infection while others are not so you need to factor in you child's infection into the whole picture of medicating your child( which no psychiatrist is likely do )

 

I am sorry if I sounded like a teacher lecturing but I really wish you and your child best and don't want you to repeat my mistake which was to sit on a combination of medication that was not really helping my son but did not know what else to do.

thank you

[Nita]

Looks as though we've down a similar road. Zoloft made his ADHD worse, including not caring about rules or really anything, no motivation. Luvox decreased his executive function even more and this is when anger was creeping in. Risperadol made him angrier. Haliperidol - raging anger - followed by an evening of paranoid thoughts (someone is filming me thru the window) - psychiatrist didn't beleive this one so reason we are switching doctors. He did give him oxcarbazepine for anger and that actually seems to have calmed him down, but it also seems to slow his thiking process. Hoping to wean him from this after we wean the Clonopin which makes him hyper, decreases executive function and short tempered. Dr. K. said PANDAS do not respond to meds like other kids so you are right about that. What I'm hoping is that the IVIG works enough to just have him on Cymbalta (which seems to work a tiny bit although I think it is also causing him to be not motivated) and then with 3rd and even 4th IVIG he starts to recover. Guess I'm always hoping for the best.

 

Someone posted earlier that 600 mg dosage helps brain swelling. I did give this dosage to my son and his OCD went down, but when I asked Dr. K. (he had a second IVIG with him 2 weeks ago) he said to be careful with Ibuprofen as it can cause liver damage. Does anyone know how long I can give him this dose safely? I am trying to wean him off Klonopin (per Dr. K.'s advice as he feels it may be causing some of his anger episodes) and the Ibuprofen dose seems to calm him as well . I was thinking of giving him the Ibuprofen for a few weeks until he is weaned off Klonopin and hopefully, IVIG kicks in better. Right now I am seeing some improvement from IVIG, with one amazing day, but also ups and downs. Dr. K. is also suggesting a change of his OCD medication as it doesn't seem to be doing much good. He switched from Luvox (which had the side effect of anger and increased ADHD) to Cymbalta, a SNRI. It just doesn't seem to effect the OCD that much though. He sees a new psychiatrist Monday. What brands of SSRIs are working for you PANDAS kids?

 

trial and error for every kid reacts differently do these type of drugs.

prozac worked like wonders for 5 months before it went down the hill with horrible side effects

celexa did not do anything

paxil worked very well( in fact it was best ssri to my son's ocd symptom, was very happy for a year but rage began to crept in around age 13, 7th grade---I suspect it was from hormone as well) discontinued because paxil cannot be used with other med.

zoloft-----began this med when abilify was added to address my son's rage, odd symptom.

strattera made my son 10 times worse with his ocd

risperadal made my son very angry

abilfy made my son gain a lot of weight and made him very sleepy even at a very low dose. I would give him 3-6 mg every night and he still fall asleep in his class room the next day even with help of concerta. very very powerful med.

 

I am not against medicating a child if she or he needs. ( if there is anybody who talks against this type of med, she does not have a child like mine.)

But I advise you to be on guard. Psychiatrist can not just come up with a medication that are not there to begin with. He could only treat your child with what is available in medication pool. Pandas or not, Dr. could only address its symptom as it is like any other ocd or odd symptom.

Educate yourself about these meds and make a chart ( food, vitamins, med, illness---stressful events).

Difference between pandas child from other child with same symptom would be pandas child is involved with strep infection while others are not so you need to factor in you child's infection into the whole picture of medicating your child( which no psychiatrist is likely do )

 

I am sorry if I sounded like a teacher lecturing but I really wish you and your child best and don't want you to repeat my mistake which was to sit on a combination of medication that was not really helping my son but did not know what else to do.

thank you

[pathfinder]

I am very sorry again.

Since I am fairly new to pandas and this cafe as well, I did not realized that you have a lot more experience with this matter than myself.

I look forward reading your post in the future.

Thank you

[thereishope]

Nita, like Dr K said, some PANDAS kids do not react well to psych meds, in general. It may actually aggravate their condition. I'm bringing this up because of how your son reacted to some of the meds. I see you just recently joined the forum, but something tells me you are are well versed in a lot of the areas. But, just in case you have not seen these threads yet, these are very helpful...

 

PANDAS Fact Sheet (includes a blurb about PANDAS and SSRI's)

http://www.latitudes.org/forums/index.php?showtopic=6265

 

PANDAS FAQ

http://www.latitudes.org/forums/index.php?showtopic=6266

Edited April 3, 2010 by Vickie

[Joan Pandas Mom]

Hi Nita, My 15 1/2 yr old son was on SSRI's for 5 1/2 years out of the 6 years he has had PANDAS. None of them worked. He is getting better off them with the treatments a lot are doing here. He tried 3 or 4 different SSRI's. He was on 200 mg of Zoloft for 2 years up until October, 2009 when this last exacerbation started. I personally feel the SSRI's do not work for most PANDAS kids.

 

Nita, like Dr K said, some PANDAS kids do not react well to psych meds, in general. It may actually aggravate their condition. I'm bringing this up because of how your son reacted to some of the meds. I see you just recently joined the forum, but something tells me you are are well versed in a lot of the areas. But, just in case you have not seen these threads yet, these are very helpful...

 

PANDAS Fact Sheet (includes a blurb about PANDAS and SSRI's)

http://www.latitudes.org/forums/index.php?showtopic=6265

 

PANDAS FAQ

http://www.latitudes.org/forums/index.php?showtopic=6266