Jump to content
ACN Latitudes Forums

pathfinder

Members
  • Content Count

    158
  • Joined

  • Last visited

About pathfinder

  • Rank
    Advanced Member
  1. very mild and trasitional. head nodding, vocal sound( humming), blinking eyes. I have not seen them in few months. ( since starting lyme treatment???)
  2. Nancy Thank you for posting. I visited their website and Found out that our pandas doctor is on board with this protocol as well so I am thinking of making appointment for my son.
  3. Nancy Thank you for posting this. I am so very interseted in this theory. Would you mind posting your list of supplements/ Try to do a bit of short cut here by borrowing your protocol. My son's biggest emeny has always been ADD/ ADHD and nothing has been helpful in that regard. I used to think it was OCD that was causing add as brain was focused in wrong thing in life but even with his OCD being addressed with pandas/lyme treatment, ADHD remains as strong as ever. Thanks in advance
  4. Hello petie My son did his iVIGs at Crescent health center at Santa fe Spring near Norwalk. They offer home infusion option as well. ( they send a nurse to your home) Dr. L prescribed and forwarded it to them and they contacted us. My son was very non Lyme as per igenex tests but still pursuing lyme treatment anyway because of his high mycoplasmas P titer with bartonella positive testing result. ( not to mention high ASO titer)
  5. My son is also going for T&A in early Dec. I do not know if my son could be of any help as he is already 18.
  6. Hello pandas16 How is your TSO going? Can you share rTMS treatment information with rest of us? Since I heard that you are tabling rTMS, I started to take interest in that treatment and I found that there are 2 different rTMS treatments. One with ribbone shape that goes on front of head and the one with ice cream shape that goes on left side of brain. Which one are considering? Thanks pandas 16
  7. I also pray for your son's fast and full recovery. I am very happy that you came back to post. I was wondering about you.
  8. We are still doing TSO He hosted his 10th dose yesterday How are you doing with TSO?
  9. Thank you Beeskneemommy Would you say lowering ASO titer helped your son in anyway even with L& bartonella in the background? My son also tested positive for bartonella ( probably lyme but definite) along with mycoplasmas.
  10. hello everyone I have questions for you. My son was tested high on ASO titer (IGG not IGM ) about year and half ago at age 16. He had all the classical symptoms of pandas along with high titer so we went after pandas treatment aggresively with some success but some of his physical symptoms that were that of lyme and co so we moved on the that area ( lyme and co treatment is long term with wax and ween type of treatment so cannot declair success as of yet but we are at the right place) I am retabling pandas issue because our lyme dr ran my ds (now 18) ASO titer few weeks ago and it came u
  11. Thank you all for your inputs but I will keep him with Cal doctors until I find someone near his school for now. He is doing well (knock on wood ) To Pandas16 How are you doing with TSO yourself? Will went down the hill with last dose (7th, I think) I was so so disappointed but he is doing better with current one. I have 2 more doses left and if I don't see improvement by then, I am thinking of stopping TSO.
  12. Hello WIlma What about giving seroquel at a different time than dr recommended or give her less than dr prescribed and build her up to it? As good of a dr he/she maybe but he does not know of every detail of your child so it is up to us to figure out details of how the medication is dispersed. It is like throwing balls to a wall to see if you can hit the bulls eye with given balls. Doctors are giving you the ball but it is up to you to target it at light spot and the right Pathfinder
  13. Hello Lyme people After agonizing and sleepless nights, we decided to send my just turned 18 hrs old pandas/bartonella/probably Lyme son to a college in upstate NY. He is leaving not only his home and family but comfort zone of pandas/Lyme doctors of southern Ca. (you all understand how uncomfortable and annoying it was to be seating in a doctors office who has no idea what pandas means or not believing lyme could cause ocd. I am looking for a Lyme doctor who also understands pandas in Rochester NY area. My son is starting his orientation tomorrow so we just flew in last night. He will
×
×
  • Create New...