post IVIG symptoms ramp up

[KeithandElizabeth]

The first 5 weeks were very hard for us. We really started to see a leveling out around the 6 week mark. Dr. Kovacevic told us he sometimes called the first 6 weeks the "suicide time" for some parents.

 

Elizabeth

[wornoutmom]

Wow! This is all making me reconsider the IVIG!! I don't know if I could possibly handle "worse" - not enough red wine in the world...

[bubbasmom]

Wornoutmom, my son was in sort of a remission for about 8 weeks then a big flare up of symptoms. I scheduled IVIG, but he started getting better. I thought 'well we'll still do it JUST IN CASE'. now we're back into it. I'm regretting it for the moment. But I still wonder if that won't help him STAY in a remission type phase. Who knows!