Could the fog be clearing?

[airial95]

After our completely horrible day on Thursday, it's like the clouds have opened and the sun came out! Our little man had a good day at day care on Friday - no aggression, a few spatial issues but was able to talk through his meltdown and calm himslef yay! On Saturday he had a great day - with only some real minor spatial anxiety right before nap time (he was a hour overdue for nap too) And yesterday was near perfect - in the 0-3 range on all our our behavior tracking!! While some of our habits returned this morning - they were far better than normal too!! This is Day 10 of the second 15 day course of abx. Could be our light at the end of the tunnel (I know - it's only the end of the tunnel until his next exposure - but I'll take any optimism we can get right now!!)

 

In light of all of the good news - I have a question. Most of you on here have dealt with this in older children, so I'm not sure if you can help or not - but here goes.

 

My son has always been very verbal - always advanced for his age in his speech development. In the last week or so, we noticed a significant improvement - leaps and bounds - in his verbal communication. He suddenly is more articulate (for a 2 year old anyway) and seems to be able to express his needs/wants/fears more clearly than he has been recently. Before it was just screams and "NO"'s, now he's able to "use his words" again.

 

Could this be becuase the abx is clearing some sort of fog for him that he can communicate what's bothering him now? Has anyone else noticed this?

[momaine]

After our completely horrible day on Thursday, it's like the clouds have opened and the sun came out! Our little man had a good day at day care on Friday - no aggression, a few spatial issues but was able to talk through his meltdown and calm himslef yay! On Saturday he had a great day - with only some real minor spatial anxiety right before nap time (he was a hour overdue for nap too) And yesterday was near perfect - in the 0-3 range on all our our behavior tracking!! While some of our habits returned this morning - they were far better than normal too!! This is Day 10 of the second 15 day course of abx. Could be our light at the end of the tunnel (I know - it's only the end of the tunnel until his next exposure - but I'll take any optimism we can get right now!!)

 

In light of all of the good news - I have a question. Most of you on here have dealt with this in older children, so I'm not sure if you can help or not - but here goes.

 

My son has always been very verbal - always advanced for his age in his speech development. In the last week or so, we noticed a significant improvement - leaps and bounds - in his verbal communication. He suddenly is more articulate (for a 2 year old anyway) and seems to be able to express his needs/wants/fears more clearly than he has been recently. Before it was just screams and "NO"'s, now he's able to "use his words" again.

 

Could this be becuase the abx is clearing some sort of fog for him that he can communicate what's bothering him now? Has anyone else noticed this?

One thing I haven't talked about much is that particular symptoms. My dd (alwasy very precocious) was just in a complete fog before we started antibiotics. It just seemed like she couldn't think at all. She would blurt out the most ignorant things sometimes and just really seemed to be going backward intellectually. Even though we've just switched her to Biaxin for the Mycoplasma, since she started Zith, her clarity has returned to a large degree. Where before she couldn't even keep track of when it was her turn playing cards, now she can strategize again.

Angela

[Kayanne]

Prior to her PANDAS episode, my daughter was very verbal. Duriing her episode, she barely said anything except to shout no when she didn't want to take her medicine, sit on the potty, get dressed, go to the pool. Her speech came back almost overnight at the end of her steroid treatment. She even came home from a day camp and excitedly said, "Daddy, I can talk now!"

 

She definitely appeared to be in a fog...her short-term memory was affected, she had a defensive posture, and she startled very easily by soft noises.

[dut]

Hi - our dd6 has a PANDAS dx. Our ds2 may also be PANDAS, we have seen some signs (and got a camk score of 151% and elevated anti lyso). We did a steroid burst on him as diagnostic - we saw minor improvement in behaviour, huge imrovement in sleep and also he went from using very short 2-3 word sentences and single words to really communicating :-). Maybe it was just his time for his language to leap forward, as they do, but the timing was certainly suspicious.

[thereishope]

This is what I wrote in another thread today about speech and PANDAS....

 

 

Oddly even with my PANDAS son, he was dx with a severe speech disoder when he had just turned 4. When he finally started speech therapy they were amazed how quickly he caught on. When PANDAS surfaced in Sept 2008, he then slowed down tremedendously in making progress with his speech. Then when he recovered, he went right back to making his goals rather quick. He's always been on target for all other milestones.

 

 

Also, it is very overwhelming to have so many thoughts go through their young minds and keep track of all the rules OCD is telling them to follow. It's easy to see how a child would become frustrated and not be able to communicate that to the parent. Once the meds help, the OCDand PANDAS ease up, those interfering thoughts and actions are no longer there and the child can communiate easier.

[thereishope]

When you refer to spacial problems, I am thinking sensory issues. Speech and sensory often go hand in hand. Hopefully now that you see speech communication improving those sensory issues will now begin to improve.

[airial95]

We've seen improvement all across the board this weekend. He used to be very communicative, but stoped "advancing" (for lack of a better word). We didn't really think much of it because his speech patterns till seemed normal for a 2 year old, but he was no longer ahead of his peers (which didn't seem like something to be very concerned about at the time). But now he's relating thiings to us in ways he hasn't before.

 

Like Friday night at dinner, there was something on his plate that wasn't "just right" and he was starting to get very worked up until we made it "all better" when he looked at me and just said "Mommy, I'm sad". Like he was trying to tell us with words instead of a meltdown that something was wrong.

 

It was a big step for us and I'm glad to hear that it's not an uncommon piece to the puzzle.

[airial95]

Prior to her PANDAS episode, my daughter was very verbal. Duriing her episode, she barely said anything except to shout no when she didn't want to take her medicine, sit on the potty, get dressed, go to the pool. Her speech came back almost overnight at the end of her steroid treatment. She even came home from a day camp and excitedly said, "Daddy, I can talk now!"

 

She definitely appeared to be in a fog...her short-term memory was affected, she had a defensive posture, and she startled very easily by soft noises.

 

 

Being in a fog was really the only way I could even describe it! Thanks for sharing your experience!