Pepsi Refresh Project..... PANDAS

[P_Mom]

Fans, support, ideas needed! Let's do this!!

 

http://www.facebook.com/#!/pages/Pepsi...82.309749594..1

[thereishope]

I'll post it on the PANDAS groups on fb.

[Kayanne]

I clicked the link...it isn't working

[thereishope]

I just clicked on the one I have in my favorites and it worked..

 

http://www.facebook.com/pages/Pepsi-Refres...82.309749594..1

 

Otherwise, when I went to fan pages, I just typed Pepsi Refresh and the PANDAS one was an option.

[thereishope]

Can I make a suggestion about the page. I love the links, but can you put a summary of the diosrder for those who stumble on the page w/o knowing a PANDAS parent/child. Also, are we putting Dr Cunningham's rearch as the benefactor? If so, should we put a summary of her research in the discussions area?

[P_Mom]

Hi Vickie...thank you for our help and suggestions. I am really going to get some work done on this on Monday.....the kids will be in school and I have a free day.

 

I am going to summarize things..make it better, so, yes, I will do that for people who are not aware of PANDAS. I kinda just threw it together fast in an excited rush.

 

Also, on Monday, I am going to begin to try to make contacts with Dr. Latimer, Trif, K and C. I want their opinions on IF (I know...I know...a big IF...but, I gotta try)....any way IF we should happen to receive a grant for PANDAS research, what/where, in their opinions, would be the best use for the money. I think these docs insights on this would be good.....then, I will go from there. I need to know this before I submit the application in March.

 

Also, I believe EVERY parent who comes on this forum should be signing on as a fan of this project...even visitors to the forum. It is all about the number of votes! I will be telling everyone....church (about 500 there), schools, friends, everyone. When I distribute my Got Strep cards...I will tell them. If anything...and they don't want to be a fan of the page (being a fan helps me make mass contacts with everyone to let them know what is going on), atleast they can log onto Pepsi Refresh in March and vote!

 

Anyway...yes, Look for some changes on Monday...and more changes after I get the docs opinions.

 

Meanwhile....if you are looking for some help/answers for your child....please log on to FB Pepsi Refresh Project and vote in March!!

 

Thanks!!!

 

http://www.facebook.com/#!/pages/Pepsi...82.309749594..1

[pixiesmommy]

Done And posted to my FB page as well.

[P_Mom]

THANK YOU!!!

[P_Mom]

They are accepting applications from the 1st of every month to the 15th, or, when 1000 applications are met for the month. I can submit March 1st if we are ready......and then monthly after that.

[P_Mom]

Can anyome come up with Cunningham's e-mail...or Kathy's? I am trying to contact them about this......can't find it.

[thereishope]

Madeleine-Cunningham@ouhsc.edu

[P_Mom]

Thanks...got it. I have contacted Dr. T, L, K and Cunningham...waiting to hear!