recently diagnosed

[jayjay]

OK, so I’ve been following these posts for a while now and I think it is finally time to join in realizing the only way to get through this is to learn and get strength from those that have walked the path before me and to help those that follow.

 

My 9yr old son was recently diagnosed with PANDAS. The last five + years have been filled with guilt, regret, tears, and financial drain, trying to find answers. We even paid for parenting classes. He is my 5th child! Wow, was that dumb, but I think we have all been to the “I’ll do anything you say to make this nightmare go away” place. I took way too many trips down that road instead of listening to my heart. Last year was particularly hard after a two-week hospital stay that only left us with a son with PANDAS on Zoloft.

 

It has taken a couple more months of ###### and a pediatrician that basically gave up on my son to push me to do what I heard my heart was telling me to do for a long time. We have finally found the right Dr. and hopefully my son is on the path back to health. As I brace myself for more ups and downs… I am glad I am here.

[momaine]

Welcome to the group that no one wishes the had to be a part of. (you know what I mean, we just wish we had healthy kids) This goup has been my LIFE SAVER! I'm glad you found it. Good luck with your son.

 

Angela

[thereishope]

Welcome.

 

As you probably know, the most important thing is KNOW you're child will get better. That is the driving force in all of this. The journey may be hard, but it sure is worth it. My son is doing well right now. I still have moments when I take a step back and just realize what he has accomplished. I smile and I still shed tears. I am so thankful he has come back to me.

 

When you deal with PANDAS, the parent becomes emotionally and psychologically scarred. Many have decribed it as Post Traumatic Stress Disorder. It covers it perfectly. Know it is okay to have moments of desperation and moments when you just feel like throwing in the towel. Just make you always pick yourself up and continue on.

 

My life has changed forever because of what my son went through. And I hope and pray every day it will not come back.

 

Don't ever hesitate asking a question. Everyone here is very open about their experiences. That's the only way we find out how to help and realize similarities.We are all here to learn from each other.

 

Welcome to the club!

[7upMom]

Welcome here, and you will find good support and answers! It has helped us on a path and that is a Godsend! We also have a big family here, two sets of twins (6 and 4) under our PANDAS 9 yr old, the stress of trying to research - stay informed, stay in tune, take care of your PANDAS child and all the others in the family is HUGE and to deal with the guilt of it all I just continually remind myself- "I am doing my best" as long as you can say that, set the guilt aside and know you are on the right path here.

[LaraM]

I'm new to this site too. It is so amazingly comforting to know others have been there done that...I am in awe at your journey getting to this point. I cannot imagine! It is so awesome that you have found the right doctor now!

[jayjay]

Welcome to the group that no one wishes the had to be a part of. (you know what I mean, we just wish we had healthy kids) This goup has been my LIFE SAVER! I'm glad you found it. Good luck with your son.

 

Angela

 

I do know what you mean, I'm already part of the stillborn baby group. I was hoping that was going to be the only group I would would have to join. I know from being a part of that group that sharing and caring is the only way to get through this. I have learned so much from everyone already. The best part is knowing that you are not alone and the support that is shown in these posts is truly unbelievable.

[jayjay]

OK, so I’ve been following these posts for a while now and I think it is finally time to join in realizing the only way to get through this is to learn and get strength from those that have walked the path before me and to help those that follow.

 

My 9yr old son was recently diagnosed with PANDAS. The last five + years have been filled with guilt, regret, tears, and financial drain, trying to find answers. We even paid for parenting classes. He is my 5th child! Wow, was that dumb, but I think we have all been to the “I’ll do anything you say to make this nightmare go away” place. I took way too many trips down that road instead of listening to my heart. Last year was particularly hard after a two-week hospital stay that only left us with a son with PANDAS on Zoloft.

 

It has taken a couple more months of ###### and a pediatrician that basically gave up on my son to push me to do what I heard my heart was telling me to do for a long time. We have finally found the right Dr. and hopefully my son is on the path back to health. As I brace myself for more ups and downs… I am glad I am here.

 

Thank you all for your words of encouragement!