earnestfamily7 Posted February 4, 2010 Report Posted February 4, 2010 I just read in another post... and now I cant recall which one... about a sleep study. My daughter is scheduled to go for one next Wed... overnight.... Has anyone done this and what are they looking for.... Did it give you any answers as to why they wake in the middle of night or have trouble getting to sleep.... Thanks
mk8898 Posted February 5, 2010 Report Posted February 5, 2010 I just read in another post... and now I cant recall which one... about a sleep study. My daughter is scheduled to go for one next Wed... overnight.... Has anyone done this and what are they looking for.... Did it give you any answers as to why they wake in the middle of night or have trouble getting to sleep....Thanks We did a sleep study in June (during first major PANDAS episode). The doctor that read the study did not believe in PANDAS; but concluded that he had sleep apena and recommended T&A surgery. We did the surgery, the sleep apena is gone and he no longer has night terrors. Good Luck, Michelle
7upMom Posted February 5, 2010 Report Posted February 5, 2010 They did a sleep study on our son , to check for Apnea. He has enlarged tonsils ( always has) but the sleep dr took a look and said his airway was still clear. Our son sleeps A LOT, he takes a low dose sleeping med to get to sleep at night - crashes by 8:30 pm and then wakes at 8 am, some days naps for 3-4 hours and he is 9- due to this reason she ordered the sleep study anyway just to be sure. He came out clear no Apnea. His psych told us that there are times when he has seen an underlying NOS mood disorder that if a child has apnea and tonsils removed, this will help clear that mood disorder right up.
earnestfamily7 Posted February 5, 2010 Author Report Posted February 5, 2010 she had T & A in Sept... her tonsils were kissing.... the sleep problems have been on and off for the past few years. I really believe they are all part of the exasperation.... (I am in the process of completing Dr t's spreadsheet to get well rounded pic of everything) ie. she is scared to death to go to bed in own bed or even be in room alone... she wakes at night very scared... since New Years we had 2 weeks (after a round of antibiotics where she did not wake 'terrified'... We are doing the study basically to 'cross it off the list' as many drs ask of we have done one due to mood/tantrums and waking at night as well as the fact that she can not fall asleep on her own w/o melatonin supp. .... I can tell though that the drs and nurses at the hospital before and after the T & A said she would be able to sleep much better as they were GIANT... but unfortunately the T & A was not the solution for her I'll let you know what we find out...
mom md Posted February 5, 2010 Report Posted February 5, 2010 We did two studies along the path to finding a diagnosis. The first one suggested restless leg syndrome and the second one did too. In the first he was arousing 5-7 times an hour and then the seond one 14 all do to movements. Before we knew about PANDAS we tried many things for sleep and none worked. We tried Mirapex for RLS which is a dopamine agonist so it made the PANDAS much worse. Once we got the PANDAS diagnosis and have treated it he is now sleeping very well.
simplygina Posted February 6, 2010 Report Posted February 6, 2010 My son has always had sleep problems. He slept all night in his own bed from 4-5 years old but when we moved he started coming back in. He's now 10. In Nov. 2008 we finally had the tonsils removed because he's had strep so often, they were HUGE and always had been, and we hoped it would help the sleep. By January 2009 he was sleeping the entire night in his own bed. He also started taking Zoloft 25mg at that point. I'm not at all sure if it was the tonsils, the antibiotics because of the operation, age, therapy or Zoloft. Unfortunately in October he started to trying to come in again. Before he would wander in half asleep and climb into his sleeping bad and zonk back out. Now he is WIDE awake. I won't let him sleep in our room anymore-so he reads if he isn't terrified, or climbs into bed with our other son if he is. Two nights ago he had his brother come into bed with him plus he rounded up the cat and the dog to sleep in his room. He didn't try to come back into our room so I guess that helped. I read somewhere that a lot of night waking actually has to do with low blood sugar and needing more food. When I can get DS to grab a snack, it usually helps. Unfortunately he is afraid to go into the kitchen alone so I have to go in with him. I need to think ahead and have some good snacks in his room that don't require refrigeration. I try to get him to eat enough at dinner to get through the night or have a decent before bed snack but he isn't much of an eater. I thinking by 1-3 am he needs more fuel. He definitely has hypoglycemia and I've noticed that hunger is one of his main triggers. If I can keep him fed every 2-3 hours with a balanced mini meal he does much better. Maybe you could see if a snack would help? String cheese is nice because it doesn't leave crumbs.
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