Ehlers Danlos Syndrome and PANDAS

[jewels]

Hi again,

 

I forgot to mention on my first posting, and I don't know if there is a connection. Both my children have been diagnosed with Hypermobility Ehlers Danlos Syndrome type 3. I have mentioned this because I also found another mum in the UK with this syndrome who also has a PANDAS child.

 

Thanks

 

Jules

[thereishope]

Really? I know another mom in that doesn't post on this forum who has Ehlers Danlos Syndrome. Not sure if her teen PANDAS son has it too. If you'd like her info, let me know.

[jewels]

That would be great, I do know that it is a genetic condition, and you can have this syndrome and not have any symptoms or pain. My mom and brother both have fallen arches and joint problems plus pain. I have it, and did not suffer with any pain until around 30 years old, but I am very hypermobile.

 

My son suffers badly, lots of pain, flat feet, hypermobile, he is under physio, pain clinic and podiatry for special shoes to help walking.

 

My daughter who has PANDAS, suffers no joint pain, but is hypermobile and has slightly flat feet. All I know about the syndrome is that the protein connected to collagen production is genetically affected.

 

I would love to speak to another EDS/PANDAS mom. Thankyou Vickie

 

 

Jules