PANDAS treatment

[Andy]

My beautiful five year old son is suffering for over a month now with the whole range of ticks. He did not tested for PANDAS a year ago but we were told that it does not always show. So after a year of trying the elimination diet and supplements we are considering doing the anti-biotics treatments. Has anyone had any success with this treatment even if there was no sign of any lingering infections, internal fungus etc?

[Guest lisa]

andy, we were dealing with different issues. but i am wondering, who prescribed the nutrients--or did you figure them out on your own? and have you had heavy metals checked? what about any allergies? lisa

[Ronnas]

My son had tics and many other issues for over a year. He was being investigated for metabolic and neurodegenerative diseases and had nerve, muscle and skin biopsies done. He developed a post op infection at the nerve biopsy site and was started on the antibiotic Keflex. My son showed a DRAMATIC improvement in all of his symptoms and this was over a year after the onset of his tics. This sent us down the PANDAS road.

 

My son did not respond to Pen Vk but did well with Keflex and Clindamycin. My son has not been on antibiotics for 6 months and he is doing well. We use Bonnie's supplements and I have eliminated dairy, corn, eggs and chocolate from his diet.

 

A trial of antibiotics to see if there is any improvement would be helpful I think. In hind sight we realize my son had a chronic sinus infection which was contributing to PANDAS not the classic strep throat.

 

Take Care,

Ronna

[Andy]

In response to Lisa and anyone else who is dealing with similar issues and looking for answers as well, my son tested on the Food Antibody Assessment IgG test to have "food type allegies" to any form of dairy product from cows to goats,cane sugar, mushrooms, corn, corn gluten, gluten, rice, soy, wheat and the mold aspergullus. Bascially. he tics and he has been suffering from this condition since two years of age. He has been diagnoised to have T.S even if there is no family history and his age is quite young for it. I know he has the conditions but he was not born with the issue. When we first placed him on a gluten free diet a year ago when he was 4 the tics went away totally. Since then more things came up that he is supposed to stay away from and he had a low rate of tics that was socially passable. However, for the past month his tics have been at a high rate of frequency and are some of the worse we have ever seen. Our current doctor has not given much detail on supplements but maybe after the spectrum test, we will have a better picture. Most of the information I have, I got off the internet which is why I left every doctor's office before, three of them, when they started to talk about medication. If there was a pill designed for my son's condition, I would feel differently but since the medical field thinks its ok to use the h bomb of medications in an attempt to kill the tic and the person be dammed, I would rather spend our savings to find a natural way to suppress it and hopefully find what is causing it and treat that. I am not an expert in this matter. All I know is there is alot to learn about the brain chemistry and the stomach. Also, I would like to give Ronna a big thank you for sharing her information. Thanks Ronna.

[Guest Jenn Pare]

My son is 8 years-old and was diagnosed with Tourrette's/OCD when he was 6. He showed symptoms at 4 after a series of Strep Throat infections. I strongly urge any parent to search the vitamin therapy route before attempting medication. My son was on clonidine and Tenex and had severe chest pain on both. The doctor told me it was a "tic". Not true. I have tried Taurine, an amino acid, and have seen more reduction of TICS on that alone then on the Tenex and Clonidine. Taurine has been a godsend for us.