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Posted

I know this is to soon danny started on the prednisone 20 mg this am and he flipped out in school Very aggressive I dont think its definitly the steriods because hes had a few bad days before which is why I decided to do this now but he like flipped on his teacher and I think threres something going on on the bus HELP!!!

 

Melanie

Posted

Hi Melanie,

From what I read and experienced with Anthony they can really cause you to feel agitated, I was on them a few years back for some cervical pain and I felt awful on it. Hope things settle down.

 

Deanna

Posted
I know this is to soon danny started on the prednisone 20 mg this am and he flipped out in school Very aggressive I dont think its definitly the steriods because hes had a few bad days before which is why I decided to do this now but he like flipped on his teacher and I think threres something going on on the bus HELP!!!

 

Melanie

 

 

Do some of the kids have an issue at first and then they are better?

 

Melanie

Posted

I am suare they do. I did not let Anthony continue on them, hang in ther Melanie.

 

Deanna

Posted

My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

Posted
My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

 

 

Well I am going to continue the steriod but I didnt send him to school He went to work with his dad .This way he can see if the out burst was related to the med I dont really think it did I think its the whole disorder or whatever this is.

 

Have a nice day

Melanie

Posted
My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

 

 

do you remember the dosage?

Posted
My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

 

 

do you remember the dosage?

 

week 1-10mg 2 times/day

week 2-5mg 2times/day

weeks 3,4 - 5mg 2 times/day

Posted
My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

 

 

do you remember the dosage?

 

week 1-10mg 2 times/day

week 2-5mg 2times/day

weeks 3,4 - 5mg 2 times/day

 

 

how old and how much does she weigh?

Posted
My daughter was gettiing more "ragey" prior to taking the prednisone, and for the first two weeks, she definately had a lot of screaming, and fighting against us, but by the 3rd week when we started the taper down, her mood really improved.

 

 

do you remember the dosage?

 

week 1-10mg 2 times/day

week 2-5mg 2times/day

weeks 3,4 - 5mg 2 times/day

 

 

how old and how much does she weigh?

 

Sorry, I usually don't forget that info

 

She was 6 and about 42-44 lbs

Posted

OK, so we still don't know for sure whether the 'roids and the rages are linked.

 

My 16 year old daughter is on her second 5 day dose in 2 or 3 months, and now it's day 3. She's been way more irritable and her OCD has ramped up. She has thrown things and sworn at us out of anger and outright frustration. Being older, she's more able to keep a lid on things than the younger kids, and also to tell us how she's feeling. She's in a really bad place right now.

 

Her doctor said that if it was just anger/rage issues, then it would be the steroids (pred. 10mg/day.) But since her OCD has increased, along with some marked regression, doc says it's definitely a PANDAS "blip." She ordered daily Augmentin to replace the twice weekly Zithmax we had her on.

 

Now we have to decide whether to end the steroids as planned after 5 days, or carry on for a full month course. I am still worried about the anger issues, as it seems to be linked, even though I'm told it's not. Also, Doc says that side effects to worry about are in the endocrine system. Anyone know about that?

 

It's so frustrating not knowing what's really going on in her body! I hate trusting these harsh chemicals to take care of my precious daughter, knowing the side effects could be almost worse than what's afflicting her now!!!! Argh!!!

 

Thanks for letting me vent.

 

Allison

Posted

I don't know if this helps, but I have been on steriods (Medrol pack) twice for PANDAS episodes (plus arthritis, overall autoimmune craziness) associated with bad sinus infections. In each case my mood got MUCH worse on day 1 or 2 of the pack, but by day 3 things were leveling out and by the end of the course I felt great. Well worth the brief roller coaster for me, anyway, though it is very disorienting.

 

 

I know this is to soon danny started on the prednisone 20 mg this am and he flipped out in school Very aggressive I dont think its definitly the steriods because hes had a few bad days before which is why I decided to do this now but he like flipped on his teacher and I think threres something going on on the bus HELP!!!

 

Melanie

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