Puberty

[MomWithOCDSon]

Is it just a coincidence that many of us here on this board seem to have PANDAS kids who're just entering or in the midst of puberty? I mean, we've seen exacerbations (waxes) before, but the one we're in now, at age 12, is far and away the TOUGHEST, most tenacious, ferocious one we've experienced. And we'd like to think that, when we come out on the other side of this one, any and all future ones will pale in comparison.

 

Has anyone seen any research or had professional response as to the role hormones might play in all this?

[peglem]

Not about hormones, but is he cutting his 12 year molars?

[MomWithOCDSon]

Not about hormones, but is he cutting his 12 year molars?

 

 

I'm not sure; quite possibly. I guess I could check with the dentist. He's always been a little behind in terms of the maturity of his mouth; he's still housing some of his baby teeth!

 

Is there something about the cutting of the molars we should be aware of?

[peglem]

Not about hormones, but is he cutting his 12 year molars?

 

 

I'm not sure; quite possibly. I guess I could check with the dentist. He's always been a little behind in terms of the maturity of his mouth; he's still housing some of his baby teeth!

 

Is there something about the cutting of the molars we should be aware of?

With my child, any oral tissue damage amps up symptoms. Her ped and I think its because she's harboring intracellular strep in her epithelial cells, which is released

with tissue damage: cutting teeth, dental surgury, T&A... And the adolescent teeth seem to come with the hormonal development. My daughter had a bad flare recently w/ a double whammy of cutting 4 molars and dental surgery...all timed with the onset of her 1st period. The worst flare of her whole life occurred following T&A surgery. Looking back, her worst times always were thought to be caused by teething pain...before we new about PANDAS, we thought she just had a terrible time with teething.

[momto2pandas]

My 6 yo ds just had a tooth extraction and we had an ugly flare in follow-up. Those purple-circled, wide-pupiled "mean" eyes and "tantrums" within literally minutes of the procedure - three days before Christmas - made my heart sink. The dentist prescribed clindamycin added onto the Azith he's already on and things luckily got back to normal within 2 days.

 

The dentist said that he is very close to cutting his 6-year molars. Not looking forward to that, although at least now we know that the clindamycin+azith seems to be effective against it.

 

 

Not about hormones, but is he cutting his 12 year molars?

 

 

I'm not sure; quite possibly. I guess I could check with the dentist. He's always been a little behind in terms of the maturity of his mouth; he's still housing some of his baby teeth!

 

Is there something about the cutting of the molars we should be aware of?

With my child, any oral tissue damage amps up symptoms. Her ped and I think its because she's harboring intracellular strep in her epithelial cells, which is released

with tissue damage: cutting teeth, dental surgury, T&A... And the adolescent teeth seem to come with the hormonal development. My daughter had a bad flare recently w/ a double whammy of cutting 4 molars and dental surgery...all timed with the onset of her 1st period. The worst flare of her whole life occurred following T&A surgery. Looking back, her worst times always were thought to be caused by teething pain...before we new about PANDAS, we thought she just had a terrible time with teething.

[momto2pandas]

Haven't seen any research, but in my own experience, the episode I had after my first period was BY FAR the worst of my life - and the longest (of course, I was untreated). Good news is once that one ended, any and all later ones did indeed pale in comparison.

 

I also had the experience that "the pill" can set off problems. In my own experience, some birth control pills were disasters, and others were great. Dr. T told me that he has also seen problems with patients starting on the pill.

 

Incidentally, speaking of hormones, pregnancy/childbirth was probably the best thing that ever happened to me in terms of autoimmune issues, including PANDAS.

 

If I recollect correctly, plenty of data shows the influence of hormones on the immune system and autoimmune conditions, so none of this is a surprise.

 

 

Is it just a coincidence that many of us here on this board seem to have PANDAS kids who're just entering or in the midst of puberty? I mean, we've seen exacerbations (waxes) before, but the one we're in now, at age 12, is far and away the TOUGHEST, most tenacious, ferocious one we've experienced. And we'd like to think that, when we come out on the other side of this one, any and all future ones will pale in comparison.

 

Has anyone seen any research or had professional response as to the role hormones might play in all this?

[EAMom]

That's so interesting. I always wondered if "the pill" might help PANDAS...that is the one that makes your body "think it is a little bit pregnant". But maybe not?

 

I have heard that pregnancy helped symptoms (from Bronxmom2 and others).

 

Haven't seen any research, but in my own experience, the episode I had after my first period was BY FAR the worst of my life - and the longest (of course, I was untreated). Good news is once that one ended, any and all later ones did indeed pale in comparison.

 

I also had the experience that "the pill" can set off problems. In my own experience, some birth control pills were disasters, and others were great. Dr. T told me that he has also seen problems with patients starting on the pill.

 

Incidentally, speaking of hormones, pregnancy/childbirth was probably the best thing that ever happened to me in terms of autoimmune issues, including PANDAS.

 

If I recollect correctly, plenty of data shows the influence of hormones on the immune system and autoimmune conditions, so none of this is a surprise.

 

 

Is it just a coincidence that many of us here on this board seem to have PANDAS kids who're just entering or in the midst of puberty? I mean, we've seen exacerbations (waxes) before, but the one we're in now, at age 12, is far and away the TOUGHEST, most tenacious, ferocious one we've experienced. And we'd like to think that, when we come out on the other side of this one, any and all future ones will pale in comparison.

 

Has anyone seen any research or had professional response as to the role hormones might play in all this?

[momto2pandas]

I was on Yasmin (I think it was called) and it was excellent. On the other hand, the triphasic ones (Triphasil?) were, I believe, disasters.

 

That's so interesting. I always wondered if "the pill" might help PANDAS...that is the one that makes your body "think it is a little bit pregnant". But maybe not?

 

I have heard that pregnancy helped symptoms (from Bronxmom2 and others).

 

Haven't seen any research, but in my own experience, the episode I had after my first period was BY FAR the worst of my life - and the longest (of course, I was untreated). Good news is once that one ended, any and all later ones did indeed pale in comparison.

 

I also had the experience that "the pill" can set off problems. In my own experience, some birth control pills were disasters, and others were great. Dr. T told me that he has also seen problems with patients starting on the pill.

 

Incidentally, speaking of hormones, pregnancy/childbirth was probably the best thing that ever happened to me in terms of autoimmune issues, including PANDAS.

 

If I recollect correctly, plenty of data shows the influence of hormones on the immune system and autoimmune conditions, so none of this is a surprise.

 

 

Is it just a coincidence that many of us here on this board seem to have PANDAS kids who're just entering or in the midst of puberty? I mean, we've seen exacerbations (waxes) before, but the one we're in now, at age 12, is far and away the TOUGHEST, most tenacious, ferocious one we've experienced. And we'd like to think that, when we come out on the other side of this one, any and all future ones will pale in comparison.

 

Has anyone seen any research or had professional response as to the role hormones might play in all this?

[ilovedogs]

Just wanted to mention that my son has exacerbations with his tics when he's getting in new teeth, or when he's losing teeth. He just lost his last baby tooth 2 months ago but I saw his panoramics and it looks like those 12 year molars might be coming early b/c they are darn close to the surface. We're seeing an increase in tics for the past few weeks but if it's tooth related it's b/c his eye teeth are coming down now. We aren't PANDAs diagnosed but it's something I'm thinking about exploring soon. Also, our naturopath told me that there will be increase in symptoms when testosterone increases during pre-puberty and puberty for boys. He said that will raise norepinephrine which will, in turn, raise anxiety.

 

Bonnie

[MomWithOCDSon]

Also, our naturopath told me that there will be increase in symptoms when testosterone increases during pre-puberty and puberty for boys. He said that will raise norepinephrine which will, in turn, raise anxiety.

 

Bonnie

 

Thanks! This is exactly what I was wondering. I mean, experientially, it's no surprise, as someone else said. But I guess it just feels comforting to hear, with some chemical/hormonal basis, that puberty and increased anxiety are "standard;" unfortunately, some of our kids are just more susceptible to the impact of those changes.

[bubbasmom]

WOW, very interesting. My son too is 12, although not his first PANDAS episode. He too is cutting molars like the other post said. He too is a little behind in his teeth cutting. Weird! But I have wondered if hormones are playing a role in this. I still think its PANDAS because we trace back to the strep each time, we have that medically documented. But he has suddenly started developing the 'teenage' body. My son has always been very muscular. His pediatrician predicts, according to his pattern of growth thus far, that he will be 6'4" and weigh 240 when he's an adult. Well at 12 he is now 5'6" and 140 so well on his way. But he hit a HUGE growth spurt since September when this all happened. He has gone up 2" inches in height, 2 sizes in jeans and 1 1/2 sizes in shoes. His body just looks more manly in shape, but not really a lot of other signs of puberty. That would be worth tracking - the hormones and all of this. By the way the main symptom with him is mood - rage - etc.

Is it just a coincidence that many of us here on this board seem to have PANDAS kids who're just entering or in the midst of puberty? I mean, we've seen exacerbations (waxes) before, but the one we're in now, at age 12, is far and away the TOUGHEST, most tenacious, ferocious one we've experienced. And we'd like to think that, when we come out on the other side of this one, any and all future ones will pale in comparison.

 

Has anyone seen any research or had professional response as to the role hormones might play in all this?