Advice for the dr appt. tomorrow

[ajcire]

Tantrusm.... you will find out today where your dr. is at with pandas but the scenerio you described is very likely. I can tell you that in my office of 5 peds 1 told me I am crazy, 2 said they don't buy it but as a mom to do what I need to do, 1 told me he totally believed in it and wanted to help me but it was out of my realm and he referred me to the dr. I did see at one point with ds and the last dr. I hadn't asked about it until this year and was shocked when he said, "yes, I have several patients with pandas" BUT when it came down to treatment he only knew the one way that worked with the couple of kids he treated... and that was that those kids had high aso's, took amoxicillian and got better. Well great. He then told me that if my son didn't get all better on amox. that it maybe wasn't pandas. When he wanted me to get the aso titers done to show if there was strep or not a month after ds had documented strep I also knew that he might not fully get it. He was willing to prescribe and stuff but I actually have since found the dr. who referred me out to be the better one for me to talk to... he knows he doesn't know instead of thinking he knows and has asked me for the list of doctors that he could refer his patients to. He did the cunningham draw for me. He will swab the kids anytime I need no questions asked but I still really need to see another dr. regarding pandas.