OCD w/ strep last year; strep now...when to expect ocd?

[thereishope]

Pre-PANDAS my son was very much into pretend play. His imagination was amazing. During PANDAS, he lost it. His action figures collected dust and he no longer pretended to act things out and such. I am overjoyed that his desire to play like that is back. It took a long time. He is a very creative little boy.

 

As for how his PANDAS presents itself, I will answer that once I get my kids from the school bus. That's where I'm suppose to be right now!

[ajcire]

I just wanted to let you know you are not the only one whose husband is not quite on board. Mine tells me I am looking too much into things and just isn't getting it either. I think deep down he knows that there is something more to it than it just being who my ds is.

[thereishope]

First off, here's an old thread where many say whether their kids had OCD, tics, or both.

 

http://www.latitudes.org/forums/index.php?...ic=5220&hl=

 

 

As for how PANDAS presents itself in my son, here some of his PANDAS symptoms for his strep triggered exacerbations. He also has slight setbacks with viruses and allergies, but those (in the scheme of things) aren't bad.

 

Exacerbation #1

-Obsessed w/ fear of dirt and germs. Freak out if he thought you touched your face or his little sister

-Excessive hand washing to the point of bleeding

-Teacher noticed an obsession w/ hand washing

-Spitting at people

-Fussing w/ his plate over and over until just right.

-Pushing his chair in over and over

-Obsessed w/ hair being flat. slapping himself in the head to get it right

-Walking w/ closed fists. Refused touch. Wiped hands on clothes over and over

-Making loud sounds out of nowhere

-Hyper

-Sensory problems

-Saw "bugs" on him twice (hallucination)

-Refused to go to school on some days

-Separation anxiety

-Extreme disgust w/ his sister

 

Exacerbation #2

-Major rages w/ uncontrollable hitting and kicking

-Episodes/meltdowns last as long as 2-3 hrs. They are present more than not present.

-Major problems w/ clothes. Would lay in his floor naked, not be able to make decisions. I had to dress him in am and pm. He'd fight me over this. We'd have to hold him down.

-Saying he wants to go to heaven. He wants me to go to heaven

-Not eating….anything.

-OCD tendencies resurfacing like counting to a certain # before doing something

-Refusal to leave the house (possibly agoraphobic). Didn't leave for days until forced.

-I began spoon feeding him for nourishment

-Separation anxiety

-Sensory problems

 

Exacerbation #3

-Needing to spin or shake when passing his sister's room

-Needing to repeat tasks until just right

-Needing to wear his jacket at all times when out of the house

-Needing to wear his hood up at all times when out of the house (even when inside)

-Refusal to listen. 3 hours to get ready in the morning. Repeating "orders" several times and him never complying.

-Indecisiveness

-Refused to let anyone touch his head. Slap himself in the head to flatten hair.

-Many OCD rituals.

-The NEED to be in charge.

-ODD

-Worst separation anxiety to date

-Bed wetting

-Sensory problems

[TracyRee]

Thank you. It helps to hear I'm not alone in that. DS thinks I'm a bit overprotective and read into things too much.

 

I just wanted to let you know you are not the only one whose husband is not quite on board. Mine tells me I am looking too much into things and just isn't getting it either. I think deep down he knows that there is something more to it than it just being who my ds is.

[TracyRee]

DS has a lot of those traits, but mild (sometimes not mild)

 

He did a few things today that raised red flags with me, but nothing upsetting since his rage this morning.

 

He's lining things up over and over until they're just so (his cars, dice from a dice game)

 

Also folding and refolding stacks of washcloths.

 

 

First off, here's an old thread where many say whether their kids had OCD, tics, or both.

 

http://www.latitudes.org/forums/index.php?...ic=5220&hl=

 

 

As for how PANDAS presents itself in my son, here some of his PANDAS symptoms for his strep triggered exacerbations. He also has slight setbacks with viruses and allergies, but those (in the scheme of things) aren't bad.

 

Exacerbation #1

-Obsessed w/ fear of dirt and germs. Freak out if he thought you touched your face or his little sister

-Excessive hand washing to the point of bleeding

-Teacher noticed an obsession w/ hand washing

-Spitting at people

-Fussing w/ his plate over and over until just right.

-Pushing his chair in over and over

-Obsessed w/ hair being flat. slapping himself in the head to get it right

-Walking w/ closed fists. Refused touch. Wiped hands on clothes over and over

-Making loud sounds out of nowhere

-Hyper

-Sensory problems

-Saw "bugs" on him twice (hallucination)

-Refused to go to school on some days

-Separation anxiety

-Extreme disgust w/ his sister

 

Exacerbation #2

-Major rages w/ uncontrollable hitting and kicking

-Episodes/meltdowns last as long as 2-3 hrs. They are present more than not present.

-Major problems w/ clothes. Would lay in his floor naked, not be able to make decisions. I had to dress him in am and pm. He'd fight me over this. We'd have to hold him down.

-Saying he wants to go to heaven. He wants me to go to heaven

-Not eating….anything.

-OCD tendencies resurfacing like counting to a certain # before doing something

-Refusal to leave the house (possibly agoraphobic). Didn't leave for days until forced.

-I began spoon feeding him for nourishment

-Separation anxiety

-Sensory problems

 

Exacerbation #3

-Needing to spin or shake when passing his sister's room

-Needing to repeat tasks until just right

-Needing to wear his jacket at all times when out of the house

-Needing to wear his hood up at all times when out of the house (even when inside)

-Refusal to listen. 3 hours to get ready in the morning. Repeating "orders" several times and him never complying.

-Indecisiveness

-Refused to let anyone touch his head. Slap himself in the head to flatten hair.

-Many OCD rituals.

-The NEED to be in charge.

-ODD

-Worst separation anxiety to date

-Bed wetting

-Sensory problems