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Posted

Hello,

 

does anyone have dr. Cunningham's phone # or a site where I can order the kit.

all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu.

 

How did you get her kit for the blood test????

 

Thank you to all of you

Posted
Hello,

 

does anyone have dr. Cunningham's phone # or a site where I can order the kit.

all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu.

 

How did you get her kit for the blood test????

 

Thank you to all of you

I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw.

Posted
Hello,

 

does anyone have dr. Cunningham's phone # or a site where I can order the kit.

all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu.

 

How did you get her kit for the blood test????

 

Thank you to all of you

I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw.

 

 

What study? she is runing a study?

Posted
Hello,

 

does anyone have dr. Cunningham's phone # or a site where I can order the kit.

all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu.

 

How did you get her kit for the blood test????

 

Thank you to all of you

I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw.

 

 

What study? she is runing a study?

 

Yes, the kit/blood draw is for a study she is doing...the testing she is doing is not yet FDA approved. She will give you 2 research studies that will explain to you and your doctor How the test was derived and the science it is based on. But, she's still running trials on the test.

Posted
Hello,

 

does anyone have dr. Cunningham's phone # or a site where I can order the kit.

all I have is her e-mail address Madeleine-Cunningham@ouhsc.edu.

 

How did you get her kit for the blood test????

 

Thank you to all of you

I emailed her a very brief medical history of my daughter and asked her if she could be included in the study. She replied yes and mailed out the kit for blood draw.

 

 

What study? she is runing a study?

 

Yes, the kit/blood draw is for a study she is doing...the testing she is doing is not yet FDA approved. She will give you 2 research studies that will explain to you and your doctor How the test was derived and the science it is based on. But, she's still running trials on the test.

 

Thanks. so I just have to e-mail her? is there a phone # ?

Do you know Kathy Alvarez in her office is she the person to talk too?

Posted

Madeleine W. Cunningham, Ph.D.

George Lynn Cross Research Professor

Microbiology and Immunology

Director, NIAID-supported Immunology Training Program

University of Oklahoma Health Sciences Center

Biomedical Research Center Room 217

975 NE 10th Street

Oklahoma City, OK 73104

Tel 405-271-3128

Lab 405-271-2133 X47455

FAX 405-271-2177

email: madeleine-cunningham@ouhsc.edu

 

I first contacted Dr. Cunningham. Once she accepted my daughter into the study, she turned communication over to Kathy Alvarez who answered all my questions and emailed preliminary results. I haven't called her, but my doctor did when I shared the research papers and results w/ him.

 

You'll want to ask for the PANDAS camKinase II study.

Posted
Madeleine W. Cunningham, Ph.D.

George Lynn Cross Research Professor

Microbiology and Immunology

Director, NIAID-supported Immunology Training Program

University of Oklahoma Health Sciences Center

Biomedical Research Center Room 217

975 NE 10th Street

Oklahoma City, OK 73104

Tel 405-271-3128

Lab 405-271-2133 X47455

FAX 405-271-2177

email: madeleine-cunningham@ouhsc.edu

 

I first contacted Dr. Cunningham. Once she accepted my daughter into the study, she turned communication over to Kathy Alvarez who answered all my questions and emailed preliminary results. I haven't called her, but my doctor did when I shared the research papers and results w/ him.

 

You'll want to ask for the PANDAS camKinase II study.

 

Thank you so much, you have been so helpfull. I will contact her in the morning. thank you, thank you!!!!!

Posted

Kathy Alvarez has been super. Don't hesitate to ask questions. Dr. C & Kathy have always returned explanations to my questions. Best wishes. Get this sample in lickety-split. They are using the two months to catch up. Kathy says they have been receiving up to 14 blood kits A DAY!! Because of the length of time it takes to run the assays they are barely keeping up. They will be charting data, recording hx's, and correlating symptoms with test results--stuff they haven't had time to do yet.

 

I don't think this is so rare. :ph34r:

Posted
Kathy Alvarez has been super. Don't hesitate to ask questions. Dr. C & Kathy have always returned explanations to my questions. Best wishes. Get this sample in lickety-split. They are using the two months to catch up. Kathy says they have been receiving up to 14 blood kits A DAY!! Because of the length of time it takes to run the assays they are barely keeping up. They will be charting data, recording hx's, and correlating symptoms with test results--stuff they haven't had time to do yet.

 

I don't think this is so rare. :ph34r:

 

Thank you so much for all the info.

Posted

I thought I'd throw a reminder out there that a month or so ago, Dr Cunningham did ask Diana P (from PANDAS Network) to remind parents to send occassional updates to Dr Cunningham about the children who have completed the kits. So she can follow your children and their progress.

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