WE ARE GOING TO THE IMMUNOLOGIST TODAY

[melanie]

We got an appointment at 10 what tests do I ask him to do ?

 

Melanie

[sf_mom]

May have missed you this morning:

 

Couple of things:

 

ESR - general inflammation, C Reactive Protein 'CRP': White Blood Cell Count and Red Blood Count, STREP PNEUMOCOCCAL ANTIBODY TITER tells you if your child has the ability or not to mount a response to strep bacteria, IgG Subclasses to see if there is an underlying immune problem. When testing for Rheumatic Fever Dr.'s typically do the ESR, CRP, Anti-DNase-B plus Ecco..... because PANDAS is similar they should be done in conjunction with STREP PNEUMOCOCCAL ANTIBODY TITER and IgG Subclasses.

 

A low white blood cell count usually is caused by one of the following:

 

- Viral infections that disrupt bone marrow function

- Congenital disorders characterized by diminished bone marrow function

- Cancer or other diseases that damage bone marrow

- Autoimmune disorders that destroy white blood cells or bone marrow cells

- Overwhelming infections that use up white blood cells faster than they can be produced

- Drugs that destroy white blood cells or damage bone marrow

 

Hopefully, that gives you a start and maybe someone else will chime in.

[melanie]

Well it was a busy day The immunologist he did some allergy tests all negitive.He also recieved dannys blood work from another md and all the tests were negitive so that stinks.His pediatrician said he would order the iv monthly in the home but he wants to speak with the neuro who wont do it I dont think the pediatrician and the neurologist like eachother.I know why..Hopefully the pediatrician will do this even without the tests .He did say he didnt know the dosage for the iv and has to talk to the immunologist or neurologist,both who say he doesnt need it His ticcccs are horrible today but we spent the day in and out of drs offices. Im missrable confused and fed up I dont know what to do next anyone have a 130lb 5'8 1/2' son with tics who gets iv monthly that can tell me the dosage?not kidding im desperate.

Melanie

[EAMom]

Well it was a busy day The immunologist he did some allergy tests all negitive.He also recieved dannys blood work from another md and all the tests were negitive so that stinks.His pediatrician said he would order the iv monthly in the home but he wants to speak with the neuro who wont do it I dont think the pediatrician and the neurologist like eachother.I know why..Hopefully the pediatrician will do this even without the tests .He did say he didnt know the dosage for the iv and has to talk to the immunologist or neurologist,both who say he doesnt need it His ticcccs are horrible today but we spent the day in and out of drs offices. Im missrable confused and fed up I dont know what to do next anyone have a 130lb 5'8 1/2' son with tics who gets iv monthly that can tell me the dosage?not kidding im desperate.

Melanie

 

I would put him on 500mg/day Azith for 2 mo. minimum. If he responds to that I would keep him at that dose long term.

 

Maybe others will post with repeat IVIG doses. I think that varies. I believe those that get it monthly tend to get a lower dose (not the 1.5-2mg/kg dose kids get for a hopefully 1x IVIG for PANDAS).