dcmom Posted October 27, 2009 Report Posted October 27, 2009 Looking for an amazing, thoughtful, extra-ordinary immunologist to figure this #### out. We can see anyone in DC/ NY/ NJ/ Philly..... Any thoughts?
Debbie1 Posted October 27, 2009 Report Posted October 27, 2009 Eileen - I have seen a few people here recommend Dr. Denis Bouboulis in Darien, CT. Not sure if this is farther than you are willing to travel. We have not seen him (or any immunologist yet). I do not have his contact info but perhaps someone who uses him can post. Glad to hear your daughter is showing progress! Debbie
sf_mom Posted October 27, 2009 Report Posted October 27, 2009 Definitely, head to CT!!! He is treating post PEX with IVIG.
EAMom Posted October 27, 2009 Report Posted October 27, 2009 Yes, I added him to the helpful doc list a few days ago: http://www.latitudes.org/forums/index.php?...art=#entry42357
Ellen Posted October 27, 2009 Report Posted October 27, 2009 Eileen, Dr. Bouboulis has done immunological testing on my son, and if we don't see enough improvements from his recent PEX over the next few months, we may follow with monthly IVIG with him. He is a compassionate doctor, and I like him very much. Feel free to send me a pm if you think you would be willing to travel to Connecticut and want to know more about him or would like the contact information. Ellen Eileen - I have seen a few people here recommend Dr. Denis Bouboulis in Darien, CT. Not sure if this is farther than you are willing to travel. We have not seen him (or any immunologist yet). I do not have his contact info but perhaps someone who uses him can post. Glad to hear your daughter is showing progress! Debbie
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