Kayanne Posted October 21, 2009 Report Posted October 21, 2009 I entirely agree with you -- it does seem that it takes time for the healing process across the various treatments. Did your son ever have OCD issues with this? Is he "home schooled" by a teacher provided from your school system? (Special ed services?) Is he on antibiotics now? If not it seems like that is something many are finding is important-- All the best-- TMom Yes, my son did/does have ocd as one of the issues. He was in a private school, prior to being home schooled. We are doing the K12 International program now and have hired a private teacher to come in. He also has a real virtual teacher thru the K12 program. He is on antibiotics, 25 mg per day of azith and has been even before IVIG. Linda Is that a typo? 25 mg doesn't seem right...is it 250mg?
lss Posted October 21, 2009 Report Posted October 21, 2009 Thank you so much for answering. I am also homeschooling... but I wish we could get a teacher to come 20hr/week! Has your son suffered academically because of PANDAS? Mine has severe attentional problems, which is the biggest reason we are homeschooling... though giving his system a rest is another big reason. He is way ahead of his agemates in some areas, but significantly impaired in others. I just don't see how a school could meet his needs right now. Did you feeling that both IVIG and PEX helped your child's OCD? You mentions that his tics are lingering, but what about the OCD? Thanks! Bronxmom, Academically our son was doing well, with the exception of his writing. Math is is strong point. Prior to Pandas he had a very good memory, and right after Pex, he did tell me that he could remember things more easily. The ocd is still lingering as well as the tics. We are presently seeing a return of symptoms, one being his handwriting. He does Kumon Math and reading after "school" 2 day a week, and a few weeks ago, his numbers and writng on his Kumon papers were very neat, and this week, I can barely understand the numbers and writing! I know that with IVIG you can sometimes have a "flipping of the pages" or "turning of the pages" as Dr. K says, so it maybe the same with PEX. Linda
lss Posted October 21, 2009 Report Posted October 21, 2009 I entirely agree with you -- it does seem that it takes time for the healing process across the various treatments. Did your son ever have OCD issues with this? Is he "home schooled" by a teacher provided from your school system? (Special ed services?) Is he on antibiotics now? If not it seems like that is something many are finding is important-- All the best-- TMom Yes, my son did/does have ocd as one of the issues. He was in a private school, prior to being home schooled. We are doing the K12 International program now and have hired a private teacher to come in. He also has a real virtual teacher thru the K12 program. He is on antibiotics, 25 mg per day of azith and has been even before IVIG. Linda Is that a typo? 25 mg doesn't seem right...is it 250mg? Sorry! Yes it is 250mg
lss Posted October 21, 2009 Report Posted October 21, 2009 Lss...how much does your son weigh? My son weighs 95 lbs. Linda
EAMom Posted October 21, 2009 Report Posted October 21, 2009 I would consider upping the Azith. for a few weeks to see if that helps...I would think he could take at least 500mg/day. My 54 pounder takes 250mg/day (she started this dose at 43 pounds).
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