seeing pandas issues increase

[dcmom]

Okay. So dd has been really doing well the last few weeks. I have known it is all simmering below the surface, though. Over the weekend she came down with a stomach bug (low fever, diarrhea). I kept her home yestarday to rest, she was totally energetic and probably in the best mood I have seen her. Today she went back to school. This morning was a little harder than it has been, and this afternoon she had a pandas-like fit.

 

I am distressed. Hopefully, this is a little blip, and she will be better tomorrow.

 

When your kids have an illness. what types of patterns have you seen (how long does the uptick in pandas last)? Is there anything I can do (to prevent a relapse)? Should I have her cultured (I really don't think its strep- her sister had the same bug)? She is on 200mg/day zithromax.

 

Thank you!

[thereishope]

My son had the flu surface on Sat. Just yesterday I was saying how happy I was that PANDAs did not resuface at all like it did when he had a cold earlier this year. Well, I jinxed myself. Last night, I saw a PANDAS behavior resurface. I totally freaked out. It didn't last long, but my heart sunk. He got extremely upset over something trivial, hid under the Little Tikes slide in the basement then when I tried to pick up the swing to talk to him , he ran to his room and cowared in the corner like he did in a previous PANDAS episode. I decided I would just ride it out and keep giving him Ibruporfen even though his fever was gone. Today I kept him home from school just to give him an extra day to recoup from the flu. I have not seen any more PANDAS come back except for one similar bout this afternoon. it was mirroring yesterday's except this time he didn't run and cowar after hiding under the slide. I am hoping after the remaining congestion is gone and his body is no longer fighting any virus, I won't see anymore PANDAS. His body has also been through a lot in the past few days including a very hgh fever. When he had a cold earlier in the year, the behavior went away when the cold went away.

 

Also, when his fever reached 105, I did take him to urgent care to get checked out and had his swabbed just in case. I knew it wasn't strep, but I figured I was there anyway and I didn't want any regrets. His brother was at the dr earlier in the week for the flu and I had him swabbed and all was negative. Anyway, my PANDAS son strep tests were negative so I am sure his small PANDAS blip was due to the flu.

 

I would recommend giving Ibruprofen to keep any inflamation down right now. Also, just give some space. I know I am finding myself questioning him and testing him. He's sensing it and I'm annoying him. I'm now just leaving him be and he's doing better.

[michele]

Our PANDAS episodes came about during strep and fevers initially but then afterwards after cold and ear infections, flu and shots they would reappear. It was hit or miss on which episodes brought out the worst symptoms. However during most illness he was fine during if not better then normal. Then a few days later it hit him and the moods and tics would start up and the compulsions. The worst episodes were after kindergarten shots and high fever illnesses he started touching the ground and had repeat urinary frequency. The worst tics lasted for us was six months, of course it was the most embarrasing tic since he kept grabbing his behind through his pants. During his basketball season and school play he pulled at his bottom the entire time. Usually they change or go away after a couple months. Once I gave him car sick medicine dramamine and it really made his eyes blink and anxious. Then this summer he got an eye roll to the side after flu and fever. I hope your symptoms improve soon. It is always a guessing game for us.

 

My son had the flu surface on Sat. Just yesterday I was boasting how happy I was that PANDAs did not resuface at all like it did when he had a cold earlier this year. Well, I jinxed myself. Last night, I saw a PANDAS behavior resurface. I totally freaked out. It didn't last long, but my heart sunk. He got extremely upset over something trivial, hid under the Little Tikes swingset in the basement then when I tried to pick up the swing to talk to him , he ran to his room and cowared in the corner like he did in a previous PANDAS episode. I decided I would just ride it out and keep giving him Ibruporfen even though hs fever was gone. Today I kept him home from school just to give him an extra day to recoup from the flu. I have not seen any more PANDAS come back except for one similar bout this afternoon. it was mirroring yesterday's except this time he didn't run and cowar after hiding under the swing. I am hoping after the remaining congestion is gone and his body is no longer fighting any virus, I won't see anymore PANDAS. His body has also been through a lot in the past few days including a very hgh fever. When he had a cold earlier in the year, the behavior went away when the cold went away.

 

Also, when his fever reached 105, I did take him to urgent care to get checked out and had his swabbed just in case. I knew it wasn't strep, but I figured I was there anyway and I didn't want any regrets. His brother was at the dr earlier in the week for the flu and I had him swabbed and all was negative. Anyway, my PANDAS son strep tests were negative so I am sure his small PANDAS blip was due to the flu.

 

I would recommend giving Ibruprofen to keep any inflamation down right now. Also, just give some space. I know I am finding myself questioning him and testing him. He's sensing it and I'm annoying him. I'm now just leaving him be and he's doing better.