dut Posted September 16, 2009 Report Posted September 16, 2009 Has anyone experienced raised blood sugar levels in their PANDAS children, that hasn't been related to diabetes? Thanks, Danuta.
peglem Posted September 16, 2009 Report Posted September 16, 2009 Yes, my daughter had some "per-diabetes" BS levels that we got checked out at the endo. It turned out to not be pre-diabetes. I think ragey, fight or flight, meltdown (take your pick of what you call it) behavior may be the cause. When that happens, your body increases BS levels for quick energy source for muscles and sensory processing...part of survival mode. That's my theory...and my child is pretty close to F or F mode when she gets a blood draw.
KeithandElizabeth Posted September 16, 2009 Report Posted September 16, 2009 Yes!! We have the diabetes finger prick kit that we borrowed from my dad and my son's sugar levels were high during the times he had strep. Elizabeth
dut Posted September 16, 2009 Author Report Posted September 16, 2009 Do you know how high? We have a nephew who has had possible PANDAS type symptoms in the past and who is currently in the hospital undergoing tests cos he's been drinking and weeing a lot and has had a sore throat on and off for a couple of weeks. He has tested with very high blood sugar levels and they are assuming diabetes and it probably is but I just don't want to miss any other angles... the sore throat and lots of weeing rang alarm bells... guess I'm just seeing PANDAS everywhere these days
KeithandElizabeth Posted September 16, 2009 Report Posted September 16, 2009 Hello Dut: My son's were not in the actual diabetic range. The finger pricks were around 150 to 200. I believe they should be under 100. Diabetes 1 is also an autoimmune disease. How scary for your family - as if you all didn't have enough going on already in your family. There really seems to be an epidemic of autoimmune diseases in young people. elizabeth
dut Posted September 16, 2009 Author Report Posted September 16, 2009 Thanks for the responses folks.. as I said I think I see PANDAS everywhere it isn't these days... my dd was just telling me about a girl in her 1st grade class that cries most of the day for her mom.. I'm just ready to go spout about PANDAS and seperation anxiety to them and have to say "hold yer horses to myself"
peglem Posted September 16, 2009 Report Posted September 16, 2009 154 was the level that made my daughter's doctor suggest that we do some glucose meter checking at home. These results were: may 21: AM fasting-114, after PM meal-105 may 26: AM fasting-184, after PM meal-189 May 27: AM fasting-102, after PM meal-103 Not terribly outrageous...just enough to say lets get it checked out.
ShaesMom Posted September 17, 2009 Report Posted September 17, 2009 Thanks for the responses folks.. as I said I think I see PANDAS everywhere it isn't these days... my dd was just telling me about a girl in her 1st grade class that cries most of the day for her mom.. I'm just ready to go spout about PANDAS and seperation anxiety to them and have to say "hold yer horses to myself" Dut- Is this a parent that you know? Is there a way you can somehow bring up Pandas and what your child has been through? I feel like it is our responsibilty as parents to spread the word about this disease since the medical community isn't doing a very good job.
kim Posted September 17, 2009 Report Posted September 17, 2009 I keep trying to figure out if stress alone can raise CamK levels and cause tics due to glutamate levels changing. Then I look at this (from the Cam Kinase II thread) and wonder how the blood sugar levels are playing into this? Also, I thought anything over 126 was considered diabetic? http://www.latitudes.org/forums/index.php?showtopic=5082 http://www.sciencedirect.com/science?_ob=A...2c3bc2e7d82652a Effect of diabetes on calcium/calmodulin dependent protein kinase-II from rat brain QUOTE The increase in CaM kinase II activity was more pronounced in the 12 weeks diabetic group. Insulin treatment of diabetic rats, resulted in recovery of enzyme activity near to control values from majority of the brain regions studied. The expression of α-subunit specific CaM kinase II correlates with the enzyme activity in the diabetic rat brain.
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