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Posted

Has anyone experienced raised blood sugar levels in their PANDAS children, that hasn't been related to diabetes?

 

Thanks, Danuta.

Posted

Yes, my daughter had some "per-diabetes" BS levels that we got checked out at the endo. It turned out to not be pre-diabetes. I think ragey, fight or flight, meltdown (take your pick of what you call it) behavior may be the cause. When that happens, your body increases BS levels for quick energy source for muscles and sensory processing...part of survival mode. That's my theory...and my child is pretty close to F or F mode when she gets a blood draw.

Posted

Do you know how high?

 

We have a nephew who has had possible PANDAS type symptoms in the past and who is currently in the hospital undergoing tests cos he's been drinking and weeing a lot and has had a sore throat on and off for a couple of weeks. He has tested with very high blood sugar levels and they are assuming diabetes and it probably is but I just don't want to miss any other angles... the sore throat and lots of weeing rang alarm bells... guess I'm just seeing PANDAS everywhere these days :)

Posted

Hello Dut:

 

My son's were not in the actual diabetic range. The finger pricks were around 150 to 200. I believe they should be under 100. Diabetes 1 is also an autoimmune disease. How scary for your family - as if you all didn't have enough going on already in your family. There really seems to be an epidemic of autoimmune diseases in young people.

 

elizabeth

Posted

Thanks for the responses folks.. as I said I think I see PANDAS everywhere it isn't these days... my dd was just telling me about a girl in her 1st grade class that cries most of the day for her mom.. I'm just ready to go spout about PANDAS and seperation anxiety to them and have to say "hold yer horses to myself" :)

Posted

154 was the level that made my daughter's doctor suggest that we do some glucose meter checking at home. These results were:

 

may 21: AM fasting-114, after PM meal-105

may 26: AM fasting-184, after PM meal-189

May 27: AM fasting-102, after PM meal-103

 

Not terribly outrageous...just enough to say lets get it checked out.

Posted
Thanks for the responses folks.. as I said I think I see PANDAS everywhere it isn't these days... my dd was just telling me about a girl in her 1st grade class that cries most of the day for her mom.. I'm just ready to go spout about PANDAS and seperation anxiety to them and have to say "hold yer horses to myself" :)

 

 

Dut-

 

Is this a parent that you know? Is there a way you can somehow bring up Pandas and what your child has been through? I feel like it is our responsibilty as parents to spread the word about this disease since the medical community isn't doing a very good job.

Posted

I keep trying to figure out if stress alone can raise CamK levels and cause tics due to glutamate levels changing.

 

Then I look at this (from the Cam Kinase II thread) and wonder how the blood sugar levels are playing into this? Also, I thought anything over 126 was considered diabetic?

 

http://www.latitudes.org/forums/index.php?showtopic=5082

 

http://www.sciencedirect.com/science?_ob=A...2c3bc2e7d82652a

 

Effect of diabetes on calcium/calmodulin dependent protein kinase-II from rat brain

 

 

QUOTE

The increase in CaM kinase II activity was more pronounced in the 12 weeks diabetic group. Insulin treatment of diabetic rats, resulted in recovery of enzyme activity near to control values from majority of the brain regions studied. The expression of α-subunit specific CaM kinase II correlates with the enzyme activity in the diabetic rat brain.

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