Headache post iVIG

[melanie]

Hi Melanie,

Just wanted to check how everything is going. Hope you are having a good day.

 

 

Deanna

 

 

Ok Im depressed !! Im not seeing anything nothing !!!Tell me the truth maybe we waited to long ...When if you do ,do you see something be HONEST Please!!!

[ShaesMom]

Hi Melanie,

Just wanted to check how everything is going. Hope you are having a good day.

 

 

Deanna

 

 

Ok Im depressed !! Im not seeing anything nothing !!!Tell me the truth maybe we waited to long ...When if you do ,do you see something be HONEST Please!!!

 

Melanie-

 

Take a deep breath and relax. After Shae's first IVIG my husband and I swore that we saw no changes and we're ready to consider it a complete failure. It's too soon to see alot of changes. Remember, your son has been sick for along time and his body hasn't been fighting the infection properly. Now he has all those good antibodies and his body is likely going to war with all the infection that has been floating around. His body needs some time to begin to heal. Everyday should get a little better but there will be some days were you see a total turning back of the pages. The first week it seemed like everyday was bad. The second week I think she had two bad days. The third week it was one bad day and a couple of small incidents. Week four was even better.

 

Hang in there and be patient. It is too soon to call it a failure.

[melanie]

Hi Melanie,

Just wanted to check how everything is going. Hope you are having a good day.

 

 

Deanna

 

 

Ok Im depressed !! Im not seeing anything nothing !!!Tell me the truth maybe we waited to long ...When if you do ,do you see something be HONEST Please!!!

 

Melanie-

 

Take a deep breath and relax. After Shae's first IVIG my husband and I swore that we saw no changes and we're ready to consider it a complete failure. It's too soon to see alot of changes. Remember, your son has been sick for along time and his body hasn't been fighting the infection properly. Now he has all those good antibodies and his body is likely going to war with all the infection that has been floating around. His body needs some time to begin to heal. Everyday should get a little better but there will be some days were you see a total turning back of the pages. The first week it seemed like everyday was bad. The second week I think she had two bad days. The third week it was one bad day and a couple of small incidents. Week four was even better.

 

Hang in there and be patient. It is too soon to call it a failure.

 

 

Thanks I love this forum!!Its better then any therapy !!Melanie

[melanie]

Still nothing !! Maybe more angry though .We had a big party last night He didnt do to good I was really hoping for more I know its early but I am hoping for the best .

Melanie

[ShaesMom]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

So, you don't think you have seen any changes for the better?

[melanie]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

So, you don't think you have seen any changes for the better?

 

I see nothing good or bad! Tomorrow will be 1 week since the 1st Iv treatment. Im disappointed now.

[dee45]

Hi Melanie,

Hang in there don't give up hope yet maybe this week you will start to see something. Have you touched base with the Dr. to get some insight or reassurance??

 

Deanna

[melanie]

Hi Melanie,

Hang in there don't give up hope yet maybe this week you will start to see something. Have you touched base with the Dr. to get some insight or reassurance??

 

Deanna

 

He wants to see us in 4 weeks well 3 weeks now says if we see anything he will do it again Hes not the warm fuzzy md .Do you really think maybe this week we will see something?

Melanie

[dee45]

Hi Melanie,

I do not want to give you false hope but I really do beleive it takes the body time to heal time to recalibrate so to speak, just give it some time i am praying for you son. keep Anthony in your prayers he is having rough spell now as well so I know hou you feel --I wish there was a quick fix but it doesn't seem like thats the case. so hang in there --we are waiting for the results of the Cunnigham test, sometimes I feel even more confused.

 

Deanna