Headache post iVIG

[melanie]

Dan woke with a bad headache what is this about he finished the iV last night

[lss]

That is normal with the IVIG. Dr. K told me to give Motrin at as soon as possible when my son complained of headache after IVIG. It should go away with the Motrin, if not, you need to tell the Dr.

 

Linda

 

 

Dan woke with a bad headache what is this about he finished the iV last night

[NancyD]

Hi Melanie,

 

First, GREAT news that you were able to get coverage for the IVIG! I hope this is as successful for your son as it has been for my daughter. There are a few key things to keeping the headaches away:

 

Before IVIG

1. Always be sure your son eats a meal and drinks lots of water before starting the IVIG

2. Be sure they give him Motrin and Benedryl before administering the IVIG. Motrin is better than Tylenol because Tylenol lowers the glutathione levels.

 

During IVIG

3. Drink LOTS of water during the IVIG (I make my daughter drink ~ 16 oz per hour)

 

After IVIG

4. Following the IVIG drink LOTS of water for a few days (I give my daughter a water bottle wherever she is)

5. Give Motrin every 6 hours for 3 days following the IVIG

6. If the headache is bad I also give Benedryl

 

Hope this helps! Keep us posted on how Dan does.

Nancy

 

Dan woke with a bad headache what is this about he finished the iV last night

[ShaesMom]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

My dd had a migraine for about three days afterwards.

[melanie]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

My dd had a migraine for about three days afterwards.

 

 

Thanks I did give him advil he seems better should I just give it to him just in case I called the md he hasnt called back yet

[ShaesMom]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

My dd had a migraine for about three days afterwards.

 

 

Thanks I did give him advil he seems better should I just give it to him just in case I called the md he hasnt called back yet

 

My dd now receives IVIG monthly because of immune problems--what I've learned from those who have been receiving IVIG monthly for years is that they continue to do both the Motrin & Benadryl for up to two days afterwards to help with side effects.

[melanie]

Dan woke with a bad headache what is this about he finished the iV last night

 

 

My dd had a migraine for about three days afterwards.

 

 

Thanks I did give him advil he seems better should I just give it to him just in case I called the md he hasnt called back yet

 

My dd now receives IVIG monthly because of immune problems--what I've learned from those who have been receiving IVIG monthly for years is that they continue to do both the Motrin & Benadryl for up to two days afterwards to help with side effects.

 

The monthly iv's are they 1 day? how many hrs?

[ShaesMom]

 

The monthly iv's are they 1 day? how many hrs?

 

 

Yes, monthly IVIG is for one day. The hours depends on each individual (weight, dosage, & how fast the infusion rate is). Shae's take about 4 hours.

 

Some individuals receive what is called SubQ instead of the monthly IVIG. The Subq is given at home, I believe weekly, and is done using several needles subcutatously rather than through an IV.

[melanie]

 

The monthly iv's are they 1 day? how many hrs?

 

 

Yes, monthly IVIG is for one day. The hours depends on each individual (weight, dosage, & how fast the infusion rate is). Shae's take about 4 hours.

 

Some individuals receive what is called SubQ instead of the monthly IVIG. The Subq is given at home, I believe weekly, and is done using several needles subcutatously rather than through an IV.

 

 

Thanks his head hurts again I gave him a benadryl and an advil around 4pm I feel bad and the md hasnt called back how much advil can a 15 yr old 132lbs 400mg or more?

[ShaesMom]

I don't know the dosage for a child that size-mine weighs 41 lbs. You can alternate between motrin and tylenol. Tylenol can be given 2-3 hours after the motrin. I got an RX for Imitrex for my daughter.

[melanie]

I don't know the dosage for a child that size-mine weighs 41 lbs. You can alternate between motrin and tylenol. Tylenol can be given 2-3 hours after the motrin. I got an RX for Imitrex for my daughter.

 

 

whats imatrex

[ShaesMom]

I don't know the dosage for a child that size-mine weighs 41 lbs. You can alternate between motrin and tylenol. Tylenol can be given 2-3 hours after the motrin. I got an RX for Imitrex for my daughter.

 

 

whats imatrex

 

 

It's migraine medicine. I wonder if Excedrin for migraines would work--the caffine wouldn't help his sleeping issues though.

[melanie]

I don't know the dosage for a child that size-mine weighs 41 lbs. You can alternate between motrin and tylenol. Tylenol can be given 2-3 hours after the motrin. I got an RX for Imitrex for my daughter.

 

 

whats imatrex

 

 

It's migraine medicine. I wonder if Excedrin for migraines would work--the caffine wouldn't help his sleeping issues though.

Im not sure if his headache is migraine like.He complains for a few minutes I give him motrin and he seems fine a while later if it was that bad wouldnt he complain more? Ill see how it goes today Thanks Melanie

[NancyD]

My daughter is about the same weight and her doctor says she can have up to 600 mg motrin.

 

Nancy

 

how much advil can a 15 yr old 132lbs 400mg or more?

[dee45]

Hi Melanie,

Just wanted to check how everything is going. Hope you are having a good day.

 

 

Deanna