Dr K Europe TRIP

[nevergiveup]

I have read in previous posts that DR. K was in Europe meeting with doctors that treat PANDAS. He was gathering info. Does anyone know who he met with and what he learned? It would be great to know if they have similiar protocols as he does, if they have documented case histories, doseage, etc.... I believe I heard he went to Germany but need clarification. Thanks for info you can find.

[pixiesmommy]

All I know is that he told us 2 weeks ago that he would be leaving for Europe in a few days (and he just got back 2 days ago, so that means he was there about a week??) and he said, "They are working on a new way to diagnosis PANDAS and I am going to find out what they know." But if he learned anything, I have no idea.

 

HTH

[thereishope]

You might be able to access PANDAS studies they are doing in Europe by visting orpha. net. I haven't been to that website in a while. It is a European based portal for rare disease. PANDAS is listed on it. Last time I was on there, I asked them to include pandasnetwork.org in their info as a collaborative effort with the US for getting info out there.