WE ARE APPROVED FOR THE IVIG !

[EAMom]

Melanie...is your son on antibioitcs? I know he was on Azith. at one point. If he is pandas he should be on antibiotics (including prophylactic abs after IVIG).

[melanie]

Melanie...is your son on antibioitcs? I know he was on Azith. at one point. If he is pandas he should be on antibiotics (including prophylactic abs after IVIG).

 

Hi

 

Thanks for all of the prayers I sure can use them.Dannys off antibiotics they worked for a while then not as much we went on Risperdal and we still are things calmed down when we used the meds The Psychiatrist who prescribed the meds isnt a "pandas"believer so no antibiotics.His neurologist thinks IVIG will help him so were going in on Monday morning.I want to ask for those who did this I know your kids were younger but did you see results with tics and behavior? What should I look for in the hospital? Hes going to be there for 3 full days all he wants to know is how hes going to dress and shower with the IV in his arm,Hes been doing ok for this week but I hear the tics alot today.Not sure if its stress .Hes packing his stuff for the hospital ,movies ,research(he researches WW11 ) .Well tropical storm danny is upon us Im hoping that my storms with danny get better after the treatment.I feel very lucky that were going to get this treatment I just hope it works I know it will Im just a bit umm well keep praying and I will let you all know how its going .

 

Melanie

[EAMom]

If your son is PANDAS, I have a concern that IVIG will be a waste if future strep infections are not prevented with prophylactic antibiotics. Here's a blurb from a similar post http://www.latitudes.org/forums/index.php?...art=#entry36812

 

Can you get the Dr. that is ordering the IVIG to okay the antibiotics? IVIG with prophylactic antibiotics is a standard that all the PANDS knowledgeable docs are using...Sue Swedo, Dr. K., Dr. Latimer, Dr. Leckman...