acdrobert Posted August 11, 2009 Report Share Posted August 11, 2009 Hello all - We start school in a week and I am so dreading it. Thomas has been ticcing away quite a bit in the safe home enviroment. I have had lots of pool play dates this summer because under water its hard to tell that he is ticcing as much as he is. He started ticcing after a bout of Impetigo (changed to azith after that) and has intermittantly ticced as a response to some virus or something else that has stimulated his immune system. - but its not the pool I know that ! Anyway I am trying to find out some strategies to deal with other kids who will tease Thomas. We have rehearsed answers to questions so that he knows an answer to immediately give. He will be in second grade. Last year a good number of kids didn't seem to notice,but this year ? I read the book "Living with Tourettes" this summer and it advocated standing up in front of the class to "tell everyone about it" in hopes that the other kids might just get used to his shaking and twitching. Anyone ever done this ? Any other school strategies to employ ? I did get my requested teacher who is very very nice and understanding. So I am happy about that. For the record Thomas is less concerned about all of this than I am. I am doing a good job of keeping my anxiety away from his notice. I am actutally the most concerned about the bus. He has a 45 min bus ride when he is the most tired and tics the most. There is a monitor but the kids are somewhat hot and rambuctious and the group teasing mentality does take over at times. Any and all input is appreciated. (just a review so you know who Thomas is - diagnosed with possible PANDAS Jan 2008. Went a year with neuro drugs that worked for a few weeks but then didn't really do anything. Got IVIG with DR. K in March. Has done much better with almost all other PANDAS symptoms except we still have the blasted tics. Dr. K says it can take up to a year for the tics to go away. Sometimes they don't ever go away (gulp !) Anybody have any experience with neuro drugs that maybe worked better after IVIG. We were on Orap and then Abilify. Sorry I am asking a lot of questions here. Many thanks ! Anne Link to comment Share on other sites More sharing options...
thereishope Posted August 11, 2009 Report Share Posted August 11, 2009 How old is he? Age affects how kids see things, whether they'll tease, etc. In my son's school, one of the dad's of an autistic child held an assembly. He never directly talked about his son, but instead gave info and educated the school on autism. My son came home and just talked about what he learned. He never said anything negative. My son is 8. He was even impressed with the information he learned. It was a very good idea. Link to comment Share on other sites More sharing options...
dcmom Posted August 11, 2009 Report Share Posted August 11, 2009 Anne- I totally understand your dread about the start of school in a few weeks. My daughter is starting first grade. She does not have tics- but does have other issues that come up at school. I know the older she gets, the more other kids will take notice. Have you seen a psychologist with your son? I did last year with my daughter. She was extremely helpful in guiding me, brainstorming, and just talking out issues I was concerned about. Often, she confirmed what my gut was telling me to do. It was a huge help and support to me. If you feel the bus ride home will be the worst, would you consider driving him home? I am a bit of a softy, others may not agree with that as a solution. I just know that kids can be so cruel- which is something we, as adults, don't have to deal with. Good luck- I hope all goes well... Link to comment Share on other sites More sharing options...
thereishope Posted August 11, 2009 Report Share Posted August 11, 2009 dcmom.... Can you tell my inlaws that adults aren't suppose to be cruel? Link to comment Share on other sites More sharing options...
dcmom Posted August 11, 2009 Report Share Posted August 11, 2009 What is it with the inlaws? Mine were here last weekend. If you ask them my daughter was always a difficult child, and I am sure I am too indulgent. Sigh. I try to let it roll off.... Link to comment Share on other sites More sharing options...
pandas2boys Posted August 11, 2009 Report Share Posted August 11, 2009 Hello all - ....I am actutally the most concerned about the bus. He has a 45 min bus ride when he is the most tired and tics the most. There is a monitor but the kids are somewhat hot and rambuctious and the group teasing mentality does take over at times. Any and all input is appreciated..... Did you try experimenting having him sit at the very front of the bus and/or sit near the monitor? Link to comment Share on other sites More sharing options...
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