melanie Posted April 30, 2009 Report Share Posted April 30, 2009 Dan turned 15 today things were getting better and It looks as if it is starting to turn ugly again..Hes olnly on zith 1x per week now and I think the tics are comming back full forse remember he has verbal tics and the middle finger motor tic the fun stuff The DO dr felt that he needede to come to a 1x per week dosage i agreed now im kicking myself Im going to call him in the AM i gave him a zithro pill tonight also to add he was on lexapro 5mg and the Neuro seems to think that could be increasing tics he is also on buspar ,and tenex were taking him off the lexapro Im hoping that its causing the problems I dont understand why I cant get a handle on this I try everything hes on a GFCF diet takes taurine mag taur Insotiol.Vit D it C and i JUST DONT KNOW WHERE TO TURN i THINK I have done evrything and why cant I hel him who knows what to do ? Im confused where can I turn is there anyone that can help please !!! Link to comment Share on other sites More sharing options...
EAMom Posted May 1, 2009 Report Share Posted May 1, 2009 I would up the Azith. back to everyday. The immunologist we saw felt that my dd's regime (Azith 250mg daily, 55 pound child) was extremely safe long term. If your son is adult size I would do 500mg/ day and hope that calms things down. Perhaps eventually you could go down to 250mg/day but 1x weekly sounds way to low. Have you given Advil? Does it help? 500mg/week of Azith. /week may keep strep away but you are really decreasing the immune modulating/anti-inflammatory dose when you go that low. The immunologist we saw felt that the ant-inflammatory action of Azith. was a big deal... Link to comment Share on other sites More sharing options...
greeneyes48072 Posted May 1, 2009 Report Share Posted May 1, 2009 How long has he been on the tenex? Tenex actually made our son worse, tic wise....much worse. Link to comment Share on other sites More sharing options...
melanie Posted May 1, 2009 Author Report Share Posted May 1, 2009 How long has he been on the tenex? Tenex actually made our son worse, tic wise....much worse. Hes been on the tenex for 2 months I dont know if thats it but nothing realy makes to much sense to me anyway I just startted the zithro again and if things get bettrt than I know thats what it was he had a rage episode today I havent seen that in over a month I need to get a pandas dr that doesnt need a positive strep could it be somethinng like pandas swelling of brain? Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now