Dr K's protocol

[Betty04]

Would someone please share with me Dr. K's IVIG protocol? Specifically what is the dose he uses and for how many days? My son has been diagnosed by Dr Gupta with an immune deficiency disorder in which the treatment he recommended is monthly IVIG. However the dose I believe is less than what Dr. K uses for PANDAS. Dr Gupta would be willing to do the higher dose to potentially address my son's tics. Dr Gupta started referencing Dr K's protocol and it did not seem to be what others have received on this board. Thanks for the help!

[Worried_Dad]

Hi, Betty:

 

We had IVIG with Dr. K in October. I believe his standard dose is 1.5 grams per kilogram of patient's body weight for each of 2 consecutive days. He uses Gamunex immune globulin. From what I've been told, at least, the higher dose for 2 straight days distinguishes his protocol from most others. When we went to Chicago, each day's IVIG procedure took about 6-7 hours from start to finish (counting prep time and flush with saline afterward).

 

Dr. K appears to have a very high success rate. Our son has made great progress since the treatment, after a year and a half of pretty consistent, serious illness.

 

You can always e-mail Dr. K directly (drk@webpediatrics.com) to confirm dosage, etc. He's very good about answering e-mails, even if you're not a patient yet.

 

Good luck!

[Betty04]

Hi, Betty:

 

We had IVIG with Dr. K in October. I believe his standard dose is 1.5 grams per kilogram of patient's body weight for each of 2 consecutive days. He uses Gamunex immune globulin. From what I've been told, at least, the higher dose for 2 straight days distinguishes his protocol from most others. When we went to Chicago, each day's IVIG procedure took about 6-7 hours from start to finish (counting prep time and flush with saline afterward).

 

Dr. K appears to have a very high success rate. Our son has made great progress since the treatment, after a year and a half of pretty consistent, serious illness.

 

You can always e-mail Dr. K directly (drk@webpediatrics.com) to confirm dosage, etc. He's very good about answering e-mails, even if you're not a patient yet.

 

Good luck!

 

 

Thanks so much for your response. We are going for a second opinion next week regarding my son's immunodeficieny and wanted to have the information you provided. Thanks again, Happy Holidays and am very glad to hear that your son has greatly improved!