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Question about tonsillectomy


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Hi Everyone,

I posted a few weeks ago about my 11yo son. He has PANDAS and he is doing really well. He had his tonsils out 3 weeks ago and he is just about 100% back to baseline. The only thing I noted was some anxiety when we went to a large group party last week.

He was good before the surgery-- but now even better. He had been on prophylactic amoxicillin 250mg bid prior to the surgery and he was on 500mg bid for 10d post op. I don't know if it was the antibiotics or the tonsillectomy and adenoidectomy but his appetite is better than it has ever been ( Over the summer he had a 10lb weight loss along with his severe OCD/ anxiety issues).

 

Has anyone else seen big improvements following tonsillectomy?

I am keeping the otolaryngologist updated on his status so that he can hopefully write it up.

 

Thankshttp://www.latitudes.org/forums/style_images/1/folder_post_icons/icon1.gif

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My daughter got much, much worse after her tosilectomy. She was sent home with a 10 day course of antibiotics. When that was finished, the strep came back. But, since her throat was still healing and it was assumed the tonsillectomy took care of the strep, she was not put back on antibiotics for @2 more months. (when they did a swab and discovered it was back) She also , at the time, despite daily probiotics, developed a flaming yeast infection as well. It was the worst she's ever been.

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Our DD did fantastic after her recovery was completed (she had a painful recovery for about 1.5 weeks). Then after the strong course of antibiotics wore off, she was back to the same. This is when our Infectious Disease specialist was recommended to us by DD's pediatrician and he put her on the 9 month course of antibiotics. It worked great for those 9 months and then 5 months after... now things have gone downhill fast. I was pretty spoiled with how great things were for that timeframe, but now the antibiotics aren't working, and we're starting again with the calvery of doctors to try and find how we can get the next reprieve.

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Hi Lacy,

Did your daughter continue with prophylactic antibiotics after the tonsillectomy recovery. Was she on them pre tonsillectomy? Thanks for sharing the info with me.

 

Hi there!

 

We had a stall on the tonsillectomy surgery because DD ended up with strep. She received two weeks of antbiotics, and then had the surgery. After the surgery they gave her antibiotics for recovery. I'm not sure if they dosed her up at the hospital with any antibiotics in her IV, but after about 4 weeks of antbiotics in her system she seemed good to go in the mood department.

 

Her surgery was in May 2007, and the 9 month antibiotic course began in early September. She had a couple slip ups during the summer, but in August 2007 was when we noticed the turn for the worst.

 

Her 9 months of antibiotics began September 2007 and ended May 2008. She did great all summer long and then we noticed her moods started tanking quickly around October. She's been put back on antibiotics (just the cephlaxen) since late October, but we haven't seen much improvement.

 

Wednesday she'll be seeing a sleep neurologist... in the past she's seen a pediatric nuerologist who found results in her EEGs & MRI of patterns in her sleep area that were indicitive of seizures, but then he felt that it wasn't enough to go on to make a diagnoses and basically dropped us. ::sigh:: We're hoping round two with a different pediatric SN doctor that we'll have better luck. We're also going to talk to DD's Infectious Disease specialist about changing her antibiotics to the azythromicin (sp?) to see if that helps. A few on the forum have suggested it.

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Hi Lacy,

Did your daughter continue with prophylactic antibiotics after the tonsillectomy recovery. Was she on them pre tonsillectomy? Thanks for sharing the info with me.

 

Hi there!

 

We had a stall on the tonsillectomy surgery because DD ended up with strep. She received two weeks of antbiotics, and then had the surgery. After the surgery they gave her antibiotics for recovery. I'm not sure if they dosed her up at the hospital with any antibiotics in her IV, but after about 4 weeks of antbiotics in her system she seemed good to go in the mood department.

 

Her surgery was in May 2007, and the 9 month antibiotic course began in early September. She had a couple slip ups during the summer, but in August 2007 was when we noticed the turn for the worst.

 

Her 9 months of antibiotics began September 2007 and ended May 2008. She did great all summer long and then we noticed her moods started tanking quickly around October. She's been put back on antibiotics (just the cephlaxen) since late October, but we haven't seen much improvement.

 

Wednesday she'll be seeing a sleep neurologist... in the past she's seen a pediatric nuerologist who found results in her EEGs & MRI of patterns in her sleep area that were indicitive of seizures, but then he felt that it wasn't enough to go on to make a diagnoses and basically dropped us. ::sigh:: We're hoping round two with a different pediatric SN doctor that we'll have better luck. We're also going to talk to DD's Infectious Disease specialist about changing her antibiotics to the azythromicin (sp?) to see if that helps. A few on the forum have suggested it.

 

We have been struggling with the Pandas/strep/tic issue for a couple of years now. I feel like we have seen everyone and tried lots of things you read about on these forums (most of which I have learned about here). We did decide to take his tonsils out right before Kindergarten (aug 07). He actually never had a throat swab test be positive before that, but the blood test always showed signs of strep. Up until the tonsils were out, if the tic came on we gave him antibotics and boom, it was gone. After the tonsils were out, he was OK for a month then it came back and bad. I remember it took Several different antibotics and about 3 months for it to go away. I finally found a doctor that treats her son for PANDAS and felt more confortable with prophylactic antibiotic treatment. We use 800 mgs of amox a day and it seems to work well. Of course I hate to think he has to be on antibotics all the time, so I have taken him off a couple of times only for it all to come back! Recently, I took him off for 3 weeks, and I got strep in my sinus's... his came back and for the first time ever he tested positive in his throat. he went on 10 days of Omnisef and nothing... then zithromax and with in 2 days it was 50% better. We finished the zithro and went back on the amox and it is almost completly gone and his behaviour has been back to normal too. You might want to try a different antibotic, we even used Clindomysin (SW) once. I actually get the amox made at the compond center so it is a die free medicine. Good luck!! I know it is so heartbreaking, when it is gone it is easy to forget how bad it is, until it comes back.

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