Headaches?

[Seansmom]

My son had strep (and mono) on and off for six months. We saw a lot of hyperactiveness and sensory issues then. He had a tonsillectomy in February. Immediately after the tonsillectomy he had severe headaches for almost 4 weeks. The ENT and pediatrician blew it off as something that was going around, but we could do a spinal tap for encephalitis which would then be treated with the same antibiotics he was already on. (We didn't do it.) I had to keep him medicated with Tylenol and Ibuprofen around the clock. The headaches spontaneously resolved. It was after this that we noticed the PANDAS behaviors.

 

Has anyone else's children had headaches in association with PANDAS?

[Dedee]

Is it possible that you noticed the behavior after you stopped the antibiotics that you mentioned. The reason I asked is that my son took antibiotics after his tonsils were removed and we noticed that all of his PANDAS symptoms disappeared during that time. We were truly excited thinking it was the act of removing the tonsils. However, as soon as we stopped the antibiotics, within 48 hours, the tics and behaviors started again. I convinced the pediatrician to try the antibiotics again to see if this was a coincidence. She agreed and we we started them back. Things began to improve the next day with almost complete resolution within 48 hours. It was actually kind of creepy. I could have set my watch by it. Very predictable. The hard part was convincing any other physician that this was real. We only notice headaches when he had strep. I hope you are able to find some answers soon.

 

Dedee

[EAMom]

Has anyone else's children had headaches in association with PANDAS?

 

Hi Seansmom...yes! Here is a thread from last month: http://www.latitudes.org/forums/index.php?...art=#entry26897