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Posted

to see a difference.... I started Bonnies Vitamins on my son about 1 month ago and see nothing happening...actually seem to be more. Should I keep with this or go back to my other vitamins... I just hate seeing him have to take 10-12 vitamins through out the day when nothing is happening... or am i expecting too much too fast. I know it says to give it 2 months...but does anyone who uses the vitamins see a difference eariler.

fyi i did have him on b complex stress, grapeseed, viatmin c and fish/flax oil combo... Thanls for any input... I am going crazy with the head jerks... I have to turn away so much, and i feel horrible for doing it, I know he is frustrated too but tries so hard to keep up with his medicines without complaining!!

mary

Posted

Mary,

It should have helped by now, in my opinion.

I am guessing there is a trigger somewhere that could be causing this. With our son's corn allergy, for example, we have to be very careful with our vit supps (as most have corn in them, as do most meds). We never saw a great improvement on Bonnies. At the time when we used them we were not on his specific IgG diet. Bonnies helped relieve some of the biggies and helped with his mood tremendously, but it wasn't until after we went gluten and corn free that we saw him really improve.

You may or may not be dealing with allergies. Congestion, dark circles, frequent urination, teeth grinding, food cravings, lack of appetite-- these could be signs of a food intolerance. After much reading on the Pandas folks comments, it seems like these symptoms are discussed there frequently, too.

Caryn

Posted

That is what i would have thought also... how did you find out about the food allergies... do you have to go to an allergist and do the same testing with needles like i did when i did my allergy testings for mold, pollen and such... Thanks

Mary

 

 

Mary,

It should have helped by now, in my opinion.

I am guessing there is a trigger somewhere that could be causing this. With our son's corn allergy, for example, we have to be very careful with our vit supps (as most have corn in them, as do most meds). We never saw a great improvement on Bonnies. At the time when we used them we were not on his specific IgG diet. Bonnies helped relieve some of the biggies and helped with his mood tremendously, but it wasn't until after we went gluten and corn free that we saw him really improve.

You may or may not be dealing with allergies. Congestion, dark circles, frequent urination, teeth grinding, food cravings, lack of appetite-- these could be signs of a food intolerance. After much reading on the Pandas folks comments, it seems like these symptoms are discussed there frequently, too.

Caryn

Posted

Mary,

We did the IgG testing through Alcat worldwide. There are other companies that do as well. It is a controversial test and a lot of doctors are critical of it. In our case it was the one test we did that helped figure everything out for us. Our son had chronic multifocal tics for five months straight, and one was a neck tick too. Then after we changed his diet (and did the supps as well) we saw a gradual improvement over the next 5 months. Nine months after we changed his diet he was symptom free. We only see slight ticcing now when he has ingested an allergen, and we keep diligent watch on his food intake so that happens rarely. What we see now is an increased 'light sensitive' blink (normal movements, no exaggerations but just infrequent)-- usually happening with tiredness, or a series of nose scrunches. Nothing is chronic anymore and his teacher does not see ticcing at school.

If you are dealing with dysbiosis and have some severe intolerances that have led to gastrointestinal problems the cure rate is not going to be immediate. Depending on how much damage there is the recovery can take quite a while. The nice thing is, once you finally get there you see that 'light at the end of the tunnel' so to speak and there is a sense of 'control' over the tics. At least this is true for us over the last year-and-a-half.

In our case I do not know whether we have genetic T.S. Based on Cheri's criteria I would have to say no as we do not get waxing and waning for no apparent reason. We do have genetic Celiac in the family and my son has it.

Caryn

Link to tests that we did and other info on our son's treatments.

Posted

Hi, My daughter had her allergy testing at www.greatplainslabatory.com.They also have other testing there that you might want to consider. They happenedd to take my Insurance plan that is another thing to consider. When I first had my daughter tested for comprehensive stool test and hair sample I had that done at Doctor Data and was not covered. I could of had those test done at Great Plains and have been covered.

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