Intrusive thoughts?

[myrose]

I have read all over the internet about intrusive thoughts. It seems a child has a thought to do something (whatever it may be) and does not feel right until its done.

I am trying to figure out if my daughter had any other signs of ocd that I was not aware of.

The few symptoms I recognized disappeared just as fast a they came. This was handwashing that lasted about 5 days, having to have her pictures perfect, the urge to use the bathroom was there as well (but this went away on antibiotics)

 

She shows no signs of these anymore but lastnight as I searched through my brain trying to remember things I may have forgot, I remmebered this..... my daughter used to tell me that her brain was telling her to say bad words and also to say mean things to people.

Example....one day after I picked her up from pre-K she said that her brain wanted her to say very bad thing to one of the girls in her class. I asked if the girl did something to upsaet her and she said no and so she did not know why she wanted to say these things.

 

Is this intrusive thoughts??? And why would they just dissapear??? if in fact that is what they were.

 

My confusion comes when I think of myself...for instance I might meet up with someone or run into someone at the store and they may say something that I feel is just STUPID or weird.....I will then think to myself and also say to myself : "Gee I can not believe this Lady, what a wacko"! I say it to myself obviously......is that intrusive thoughts as well???

 

sorry for all the questions lately....I am trying to build a record of all my daughters symptoms before we started the topamax and I forgot about this brain talking to her thing.

 

After our program is complete I am headed to a new neuro and I have been documenting everything under the sun that might help in getting to the bottom of this and hopefully some answers as to what her diagnosis should be. I am sure some of you are thinking "YAH, Good luck with that one"! LOL is that an intrusive thought???

[colleenrn]

My daughter's PANDAS started the month after she turned 5 and never had intrusive thoughts (that she or I are aware of) until she turned 11. It began out of no where and the thoughts were sexual and aggresvie in nature, which you can imagine would be HORRIBLE for a little girl and her mother. Antibiotics and lots of supplements (inositol, 5HTP, fish oil, vits, etc..) seemed to make them slowly go a way. I actually just asked her this morning about intrusive thoughts and she says she does not have them at all anymore. To answer your question about why they would disappear, has she been treated with antibiotics or certain supplements that could have helped them go away? Did she have any illness during the times of the thoughts and when she recovered from the illness they went away?

Colleen

[Lacy]

My DD would tell us during our darkest days that her brain would tell her to do or say the horrible things she'd do/say. It was almost spooky. In sad attempts to keep my mood light when telling friends, family, and doctors about this I would tease that I think she needs an exorcist and not a specialist.

 

Her brain has been overactive again these days and she's becoming blantantly defiant. Almost like Turettes she spews awfulness like: I hope you die, I want to kill you, my Daddy will put you in jail, I hate you, I'm going to cut your hand off... very violent.

 

It's gotten to the point that I'm starting to worry about me and my DH's safety if this continues into her teens... God only knows I'm worried that one morning I might not wake up. That sounds terrible, and I sure hope we nail this thing before then, but it's a worry that recently crept into my mind.

[myrose]

My DD would tell us during our darkest days that her brain would tell her to do or say the horrible things she'd do/say. It was almost spooky. In sad attempts to keep my mood light when telling friends, family, and doctors about this I would tease that I think she needs an exorcist and not a specialist.

 

Her brain has been overactive again these days and she's becoming blantantly defiant. Almost like Turettes she spews awfulness like: I hope you die, I want to kill you, my Daddy will put you in jail, I hate you, I'm going to cut your hand off... very violent.

 

It's gotten to the point that I'm starting to worry about me and my DH's safety if this continues into her teens... God only knows I'm worried that one morning I might not wake up. That sounds terrible, and I sure hope we nail this thing before then, but it's a worry that recently crept into my mind.

 

 

so its something they say out loud????? and not just think it???? or is it different in each individual?

 

GEE I am so sorry to here about what you are going through! Have you tried any of the supplements that many reccomend on here?

Any meds? Sometimes (like in our case) we have to intervine with whatever brings back quality to their and your life. At least to have some time to figure it all out with a clear mind. With my daughter under control now...I understand more when I read and I am learning as much about it all as I can. It was over whleming to try and do this for me when I constantly worried about her. I guess I could say it was TOO HARD to read anything through the tears! I do wish you the best and hope that things will change soon.

What did her doctor say about it all?? (if you do not mind me asking)

[amy s]

Intrusive thoughts for my dd was the main thing that brought our life to a screaching halt. These are examples of my dd's intrusive thoughts.

1. thought she was saying bad words thousands of times per day

2. thought that she was going to kill me thousands of times per day

3. thinks that she smiles when someone coughs

4. thinks that she smiles when my stomach gurgles.

5. thinks that she smiles when we pass a cemetery

6. thinks she sticks out her middle finger

 

She NEVER DID any of that and it was very upsetting to her to the point of wanting to kill herself to stop the thoughts. Part of her ocd was the thought and then the compulsion was that she had to tell me. It was always in the same tone of voice too. And if we were in public or whatever, it didn't matter. It was a very pressured feeling for her to tell me. For example I could be trying to pay for something at a register and she would have to tell me. And with the coughing one, if she heard a cough, she would tell me 'mom, i just smiled when they coughed' and if someone else coughed before she got that sentence out...it didn't matter she had to tell me twice right in a row.

 

Currently she is a bit better about those above ocd things, it's not entirely gone but much better. I don't know if the current medication she's on has helped or if we are at a waning period. But her other ocd stuff is horrible skin picking which just recently begun and an odd hand lick and touching motion.

 

If she is having a bad meltdown she gets extremely violent, but she doesn't say stuff that is too bad at least yet. She will yell, 'you are a poopy head' or something like that.

[dut]

Our dd's intrusive thoughts were things like "if I don't whisper in the corridor on the way to bed I will die", "if I don't do this Daddy won't come home" and our particular worst one "parents let there little children run away".

 

The way I see them is that we all get a billion random thoughts each day but our brains select the good/correct and dispel the bad/wrong. Not only that but we do it subconsciously and very quickly. I think that with intrusive thoughts the child gets stuck on an idea and can't dispel it. The bad/wrong ones stand out more to parents and maybe the child is having more of the bad than good because of increased general anxiety.

 

This is just the way it seems to me. Thankfully, we haven't seen those this tiome around..just a small exacerbation....

[Lacy]

so its something they say out loud????? and not just think it???? or is it different in each individual?

 

GEE I am so sorry to here about what you are going through! Have you tried any of the supplements that many reccomend on here?

Any meds? Sometimes (like in our case) we have to intervine with whatever brings back quality to their and your life. At least to have some time to figure it all out with a clear mind. With my daughter under control now...I understand more when I read and I am learning as much about it all as I can. It was over whleming to try and do this for me when I constantly worried about her. I guess I could say it was TOO HARD to read anything through the tears! I do wish you the best and hope that things will change soon.

What did her doctor say about it all?? (if you do not mind me asking)

 

I think it varies from child to child, but DD does say this filth. It's almost like she can't help it though. She seems to save the worst of it for the adults at school. It's quite embarassing for us when we hear that she did it to someone who wasn't familiar with her situation, but most everyone (except for the lousy new asst. principal) knows DD and what is going on with her. Maybe they do it for my benefit, but everyone just loves her despite her 'fits'. That makes me feel good.

 

We had DD on a course of Cephlaxen (sp?) antibiotics for nine months - from Sept 2007 to May 2008. Aside from a small trip ups, we thought we FINALLY had this nightmare behind us until recently. So I'm completely guilty for sticking my head in the ground (a la ostritch) and pretending it went away. I recently came back to the forums - this one is a new one for me... much more activity here, to see what I could find out. Loads of great information of course!

 

Tomorrow DD has an appointment with the Infectious Disease specialist that prescribed her the long-term use of antibiotics. It was about three weeks ago that we started seeing signs of our nightmare returning. We noticed that her 'fits' morphed into something a little bit darker and more calculated. It used to be uncontrollable fits of kicking, screaming, spitting, some hateful words (nothing as horrible as the stuff now), and throwing.. etc. Now the fits are inward rage that seeps out in hateful venom. She'll tighten her fists and give you looks that would kill on the spot if they could. It's quiet scary.

 

So far it's been more tolerable emotionally because my own doctor started me on Lexapro for my anxiety attacks back in January. DH has been having a difficult time with all of this, and I've been more nose to the grind and a new and more determined outlook on getting DD back on track.

 

Enough rambling for now...

 

Thanks so much for the well wishes!