Peptide shots and more PANDAS treatment ?'s

[Indigo]

Has anyone heard of these? My doctor is suggesting using this instead of IVIG since our insurance won't cover it with a PANDAS dx. I think it does a similar thing by "resetting" the immune system. They are used for autoimmune conditions...but then PANDAS might not be autoimmune, I have read here. I'm not sure what to do. She is THRIVING on the prednisone. I just can't even describe how well she is doing. So why does the prednisone not just stop the inflammation? Why would it come back or would it only come back if she was exposed to strep again?

[peglem]

I've never heard of this. Do you have anymore info about it?

[Indigo]

No, I haven't found much information online. Apparently they have used them successfully for those with autoimmune conditions like eczema, hives, etc.

[EAMom]

Hi Indigo,

Have you seen this? http://www.ingentaconnect.com/content/ftd/...b1rf2.alexandra

 

So peptide shots are supposed to help increase the "good" regulatory t-cells....which PANDAS kids may be deficient in. http://www.ncbi.nlm.nih.gov/pubmed/16996487

 

I am intrigued to find out if the peptide shots work. It may be that they will help, but not be a complete cure like IVIG, depending on how bad your dd is?

 

So, is it a special strep peptide your doc is going to use?

[guy123]

Interesting.

 

Is it just a general immune boost in general?

 

Sounds helpful.