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Hello my name is Roger. I'm 20 years old and a college student at Arizona State. It's going to be my first year at Arizona and im pretty excited. Well here is my story as I ask for help and hope to help others. Iv'e read a lot on Tics/Tourettes Syndrome. Like most people I havent had it bad my whole life. I also don't have any of the accompaning effects like Add or anything of that nature. My dad tics also but very miminal where it doesnt effect him and people don't notice. He had all the symptoms but deveolpoed them late in life. He was diagnosed with Bi-polar, Depression Maniac, Aniexty all those kinda stuff that effected him when he hit like 24-25. Now he takes more medication than Carter takes pill but is relatively healthy and happy. Hard worker and loves wine a little too much.

Now as myself I never really knew what these tics were. I remeber having little tics back in like 3rd grade but nothing big maybe like coughing or sniffling but they would go away and I thought nothing of them. No problem what so ever is what i'm trying to get at. So living completely normal like before (Tic Free) pretty much I played 3 sports a year and was very active. No one noticed anything nor did I until I was about 18. I was done with all sports pretty much my activity levels went down. A big part of this is I have suffered a lot of injuires from football and wrestling. Too this day my body is in a lot of pain like my back always feels like it has so much tension and pain like nuero tension and has not healed in over a year. Also same with hamstring like if I do ham curls or exsplosive starts I will automatically after awhile just feel a shooting pain in my hamstring and my shoulders are jacked up and hurt when lifting. I have had injuires from ham pull to torn ligaments. This saddens me because I used to be really strong and great in the weightroom and can't do what I used to do. My speed also went down in highschool every year. My dad said same thing happend to him in highschool he was very fast and it reduced every year.

 

So the tics got worse and started with eye blinking all the time. Now I also do stuff like neck jerking a huge one. Sometimes I twitch my buttocks or need to press my legs together. Something I noticed is I have wierd little habbits which dates back to when I was a kid I would always want to press a button i didnt need to in video games and in a pool I always want to scrape the bottom of the pool with my toes. But yes have vocal and motor tics and they got pretty bad at what point. I was on gabapentin which did nothing. I'm now working wiht a accupuncturist and am taking vitamins which has helped a lot

 

Before I list what supplements I am on my 2 main theories are Pyroluria where I orderd a test kit. And also maybe excess yeast. My mom battled yeast infections. Over the last year and a half I have been getting a lot of jock itch and smell in that area a long with feet. And I'm a very clean kid so thinking yeast could be a contributing facotr.

 

Have expiermented with marijuana and generally it makes my tics worse. I tic more and am more aware of them. Not sure if this is becauase of my chemistry or maybe it can be something to do with indica vs sativa but just wanted to point it out where when I'm drunk I really don't think I tic to often at all.

 

So everyday vitamins I take are

Pure Encapsulations Nutrient 950 without Copper and Iron. Big Plus is huge amount of B Vitamins and also two different types of B6. Manganesse has good level but zinc and magnseium levels are nothing great. I

Also from Pure Encapsulations I take NAC 600MG'S twice a day.

From Intergrative Therapetics I take UBQH 50mg's 4 pills a day

Also take stablized R-Lipoic Supreme 100mg twice a day. Also includes 500mg if taurine oper pill and 4mg of biotin

Evening Primrose oil from Whole Foods. Also how is Whole Foods vitamins quality? Each pill has 500mg and i usually take beetween 4-10 a day.

Caprylic Acid 365 mg's I take one or two a day.

Nordic Naturals I take Pro DHA Has 450mg DHA 90EPA AND 40mg others for every two pills and take two pills twice a day.

Oyster Max is something I just added for zince. It's made from oysters a little pricey but wanna see how it does. I'm going to take 4 pills a day which is reccomended.

Also when ever I feel its needed i'll take mangesium pills but was wondering if anyone knew a good source of magnesium and calcium? Something that is highly absorbed.

Also take Garlic sometimes too.

 

Was wondering what a good source of OMEGA 6'S Is? Thank you for whoever took time to read my post and help. I appreciate it so much. Also so far this has greatly reduced my tics but not to the point where I want them to be. Would suggest people looking into some of the supps I posted especially the top 5

One more thing I notcied before the onset of the tics sports would be like the best thing. Now when I excercise I notice I tic a little more than usualy when i go to the gym and hit the cross trainer or play basketball with the friends.

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Your eye blinking tics, do you just blink frequently or is it a hard blink in which your eyebrows come down and your eyes scrunch up a bit? Is it preceded by a sensation in the eye that is only resolved by performing a very hard blink?

 

Cuz that's what I have. It started when I was 17 (I'm 27 now). It used to be REALLY bad and now is only just pretty bad. I'm currently researching medications and treatments and will post everything here when I'm done.

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Your eye blinking tics, do you just blink frequently or is it a hard blink in which your eyebrows come down and your eyes scrunch up a bit? Is it preceded by a sensation in the eye that is only resolved by performing a very hard blink?

 

Cuz that's what I have. It started when I was 17 (I'm 27 now). It used to be REALLY bad and now is only just pretty bad. I'm currently researching medications and treatments and will post everything here when I'm done.

Well man its just rapid blinking when the blinking twitch has happend. And yes it feels like I have to do it but the blinking one is not even the bad one now I just have different one's all the time. Right now like a small grunt and neck movement and sometimes nose sniffling and eye blinkin are effecting me most as of today.

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Hey Football guy, Nice to meet another Arizonan. There are 2 of us here on the mesage boards but we're here for our boys. My son is 9 and started ticcing about 9 months ago.

The other mom here has referred us to a naturopath in Sun City named Kenneth Proefrock. You can look him up online. She said he's VERY knowledgeable about the neurotransmitters and sulfation system of the body, etc . They have her son on a good regime that's helping quite a bit and I'm planning on getting my son over to him soon. My son also has ADD and OCD-type anxiety so I think some of his tics are tied into the anxiety.

BTW: this naturopath is pretty costly but she said his knowledge is worth it, and he also has a few Tourette patients. I really can't help on suggestions for you, quite frankly. It sounds like you've gotten a handle on what might help you, etc. The other thing I'd suggest is trying yoga since you're a pretty active guy. Yoga will increase your strength and flexibility but you'll learn some valuable relaxation techniques. I teach yoga for Pure Fitness and I have lots of young guys come into class, you wouldn't be the only one! Actually, I had a bunch of high school guys come into my class a few years ago and they were sweating up a storm and panting through the class, so don't think that yoga is for the unfit! I think you'd really benefit from the relaxation techniques the most, though.

 

Good luck,

 

Bonnie

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Hey Football guy, Nice to meet another Arizonan. There are 2 of us here on the mesage boards but we're here for our boys. My son is 9 and started ticcing about 9 months ago.

The other mom here has referred us to a naturopath in Sun City named Kenneth Proefrock. You can look him up online. She said he's VERY knowledgeable about the neurotransmitters and sulfation system of the body, etc . They have her son on a good regime that's helping quite a bit and I'm planning on getting my son over to him soon. My son also has ADD and OCD-type anxiety so I think some of his tics are tied into the anxiety.

BTW: this naturopath is pretty costly but she said his knowledge is worth it, and he also has a few Tourette patients. I really can't help on suggestions for you, quite frankly. It sounds like you've gotten a handle on what might help you, etc. The other thing I'd suggest is trying yoga since you're a pretty active guy. Yoga will increase your strength and flexibility but you'll learn some valuable relaxation techniques. I teach yoga for Pure Fitness and I have lots of young guys come into class, you wouldn't be the only one! Actually, I had a bunch of high school guys come into my class a few years ago and they were sweating up a storm and panting through the class, so don't think that yoga is for the unfit! I think you'd really benefit from the relaxation techniques the most, though.

 

Good luck,

 

Bonnie

 

Thank you Bonnie. I do think Yoga migh thelp me with my injuries and getting back into shape. Also I heard its good for body alignment. Im going to try to take a class at the college. And yes like I said my tics didnt really start till later in life so i'm trying to find out what caused such a suddent outburst. Thank you for the reply and keep them coming people thank you. Have you thought of getting your son into some sports?

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Oh yeah! He's sitting here cheering on Indianapolis! He's looking forward to starting flag football at the end of August and he plays tennis and golf the rest of the year. He also enjoys mountain biking, swimming, hiking, basketball, etc. Unfortunately, I can't seem to get him interested in yoga yet but I've taught him the breathing and relaxation techniques and they work really well for him. He always loves it when I talk him through some body relaxation w/breathing. Yoga would be excellent for your back. I have 2 chiropractors who have come to my class in the past who tell their patients to try yoga to strenghthen their cores and back muscles. I hope you find solutions to your tics! My ds doesn't really notice his tics right now and we're praying they stay mild but his OCD is what really bothers him so we're working on finding supplements that would help with that, too.

B

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Welcome footballguy,

 

My son would love your username. :) Last time I was at ASU was 1983 Fiesta Bowl, had to work selling stuff for a band trip to San Fran. I hope you have a wonderful first year.

 

My son plays baseball and loves most all sports. He however has TS pretty bad, and has been on and off for the last 3 years. He just joined a martial arts class with his father (who also had TS as a kid). My husband does not really tic at all now. Husband's father also has TS but I don't think he would admit that. I find it funny that this class they are to make lots of noise and yell, but my son seems to clam up during the class. Hoping the class would help with self esteem.

 

 

You said things started to be more noticable at 18, do you think that has anything to do with school and that kind of pressure?

 

My son is having some trouble with his teeth at this time, do you have your wisdom teeth out yet? Just a thought I would through out there for you to think about. A young girl I work with is 20 too, and she had to have her wisdom teeth pulled in May.

 

Hope you find answers, and thanks for sharing your story.

CP

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Oh yeah! He's sitting here cheering on Indianapolis! He's looking forward to starting flag football at the end of August and he plays tennis and golf the rest of the year. He also enjoys mountain biking, swimming, hiking, basketball, etc. Unfortunately, I can't seem to get him interested in yoga yet but I've taught him the breathing and relaxation techniques and they work really well for him. He always loves it when I talk him through some body relaxation w/breathing. Yoga would be excellent for your back. I have 2 chiropractors who have come to my class in the past who tell their patients to try yoga to strenghthen their cores and back muscles. I hope you find solutions to your tics! My ds doesn't really notice his tics right now and we're praying they stay mild but his OCD is what really bothers him so we're working on finding supplements that would help with that, too.

B

Ok I see. Well maybe sports will help him a lot I hope. Also I have always been interested in yoga and it was because I was serious in sports and some of my favorite athletes did yoga and ballet and stuff to help condition them so it got me interested in that. Maybe showing him an example will help. Have you found any supps that seem to help a good amount?

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Welcome footballguy,

 

My son would love your username. :) Last time I was at ASU was 1983 Fiesta Bowl, had to work selling stuff for a band trip to San Fran. I hope you have a wonderful first year.

 

My son plays baseball and loves most all sports. He however has TS pretty bad, and has been on and off for the last 3 years. He just joined a martial arts class with his father (who also had TS as a kid). My husband does not really tic at all now. Husband's father also has TS but I don't think he would admit that. I find it funny that this class they are to make lots of noise and yell, but my son seems to clam up during the class. Hoping the class would help with self esteem.

 

 

You said things started to be more noticable at 18, do you think that has anything to do with school and that kind of pressure?

 

My son is having some trouble with his teeth at this time, do you have your wisdom teeth out yet? Just a thought I would through out there for you to think about. A young girl I work with is 20 too, and she had to have her wisdom teeth pulled in May.

 

Hope you find answers, and thanks for sharing your story.

CP

I only had one side pulled out for some reason. And no I really don't think it is. It happend midway through my senior year after football ended. I didnt know what it was at first but then I researched it and find out about tic syndrome. I think maybe me excercising so much and playing all those sports maybe hid the tics? But not sure still trying to find answers. They get really bad in class and excercise now its really annoying

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