New tic and just started Bonnies!

[Toms_Mom]

Thanks for trying to get me some help Faith. Tics are same- head shaking and then like a nodding of his head while he makes this clicking sound - this one is just constant especially towards the end of the day.

 

I started thinking if I am really going to give Bonnies a chance I should go ahead and try to work up to 6 a day. I don't think 2 is going to make any impact. So today and tomorrow I thought I would give him 4 and then after that start 6.

 

I am hoping it's just a coincidence that the tic explosion happened a week after starting Bonnies- this is the time of year he always had tics before so I keep thinking its got to be something in the air. He had a nosebleed the other day which is something else he seems to get in the spring. If the tics get even worse then I guess I will just stop the vitamins.

 

Mary

[faith]

Mary,

I suppose if nothing has calmed after a week, then maybe going the extra mile makes sense. You could also call the number for Bonnie's and they could give you some advice, they are real nice and might give you a better sense of this.

 

Good luck

Faith

[Caryn]

Mary,

 

Just wondering-- is there maybe something in the vits that doesn't agree with your son? You will have to call or email and ask, but I noticed that the website lists no wheat, corn, yeast, milk, egg, citrus, etc.... but does not mention soy?

 

Is your son still GFCF? Nose bleeds are often a sign of malabsorption and possibly a vit K deficiency. I know Bonnie's do not have K in them, but they are pretty good vits none-the-less. I remember you saying a while back that you had introduced enzymes. How is that going? Maybe the tics are in relation to the enzymes? We did Bonnie's for a while last year (about 5 months) before we switched to a compounded vit for Tigger. We are no longer needing high vit doses as long as we stick with the diet. At one time our Tigger needed between 8-10 vits a day to keep from ticcing. He still had mood swings, though, as Bonnie's doesn't have adequate zinc for pyroluria (or at least didn't last year). We were pretty uncomfortable with that amount as Tigger was only 4, so we moved to a compounded vit (only 4 a day), and now we only use it when he is under stress or recovering from cross-contamination, or the artificials after eating out. He no longer has the mood swings. We do regular vits with mag and fish oil around here now.

 

(Please keep us informed with how it goes with the Acetyl-Cysteine)

As far as the Acetyl Cysteine, I think you may have me confused with Carolyn.N?

I haven't yet decided on it, but I am reading the threads. At the moment I haven't an opinion either way. We do not give any artificials over here at the moment unless it happens by accident (Like Tigger opening a jar of pickles at my mom's house and downing 5 before we realized it.) Luckily he didn't react like he might have a year ago even though it had the dreaded corn and Yellow #5. He has a cold right now and started a throat tic a couple of days before it hit him. Sorry to ramble.

 

Caryn

[Toms_Mom]

Faith and Caryn,

I did think about calling Bonnie's today, but I've been kind of down. I think I will do it tomorrow and see what they advise. As far as enzymes - we've been doing them since last Thanksgiving and he has been doing really well on them. I would like to have him tested again to see if/how many food sensitivities he has now. We are not gfcf but I do try to rotate his foods still and limit the gluten - he gets very little dairy.

 

That's interesting about the nose bleeds, Caryn-I've often thought he might have malabsorption. Is there a test for that? Also, how did you come up with what vitamins for the compounded vitamin? I'm assuming you have a good dr. you are working with to be able to do that. I really would like to find a good integrative dr for my son. I've posted here before for any recommendations here in South Carolina, but have gotten no response. I'm now wondering if anyone knows of a good doctor in the Atlanta area? My sister lives there and I travel there often. I will do a separate post later if I need to.

 

Thanks again,

Mary