HELP! POOL TIME!

[myrose]

My daughter is doing well. Still holding strong on our new regimen! Just a few foot stomps and nothing more thus so far. I seem to always hate to wake up in the morning in fear of course that it will come back on strong. I know this road to well and you would think that I would expect to see an increase after a decrease but I still have a hard time with it.

I am writing for advice on Pools. I did alot of reading through past posts and its become obvious to me that chlorine is possibly a BIG tic trigger.

We live in Florida and its almost time to swim....just got the first invite for a pool party next weekend. I am scared to say the least but I REFUSE to take this away from my daughter. I feel sometimes that I expect her to live in a bubble. With all the eating requirements and the possible triggers for tics....well......what else is there???? At any rate she will absoulely attend this party and she will also be allowed to swim. I want her to have a good time and laugh and swim...just like all the other kids.

 

I can't change someone else's pool but I can change our pool. This is where I need help.... We have a salt chlorinator for our pool.

I am not sure what this even means but I heard about the inozier and researched that as well.

Let me just say I am completely CONFUSED.........................

 

please help....what does this all mean and what can I do to make our pool water less of a threat to her condition???

 

I would hate to see her go into another explosion of tics after we have done so well.

 

I do plan and know of the epsom salt bath which is recommended right after the pool. I will and can do this at home but at someone else's house it may be impossible to do it immediately following. Not to mention that I am not sure if I could always do it immediatly following her swims at home either.

She usually hits the pool everyday starting in April and I just cannot take this away from her.

I have already placed the chlorine filter on her shower head....I didn't have the water checked (we do not drink it) but I just installed it on there anyhow to be safe. It was cheap at lowes and worth its weight in gold as far as the worries.

 

Longer than I wanted here...sorry....just need help understanding the system I have for our pool and if an iniozer is needed and will work with our current pool system.

Also sorry for the mispelled words.....type ahead of myself and cannot get the spell checker to work on here.

 

Thanks in advance for everyones advice and help

[81lumberjack]

We've been told by several DAN doctors that chlorine levels around .5 ppm are ok for our kid. We live in Texas and put a salt pool in last year and have done beautifully so far keeping our pool between .5 and 1.0 ppm chlorine. We "lived" in our pool last summer and didn't see any adverse affects on our son.

 

You have to really stay on top of it though to navigate this low-level of chlorine. We haven't had to use any ionizer. We just keep the pool free of organic material (leaves, etc.), super-chlorinate it once every ten days or so during swim season(which gets it up to between 2.0 and 3.0 ppm for a day or so and then the sun knocks it back down to our safe level within a day or so).

 

As far as visiting other pools with higher levels of chlorine...........we give our son 500-1000mg of vit c before and after the pool visit.

 

 

 

I can't change someone else's pool but I can change our pool. This is where I need help.... We have a salt chlorinator for our pool.

I am not sure what this even means but I heard about the inozier and researched that as well.

Let me just say I am completely CONFUSED.........................

 

please help....what does this all mean and what can I do to make our pool water less of a threat to her condition???

 

I would hate to see her go into another explosion of tics after we have done so well.

 

I do plan and know of the epsom salt bath which is recommended right after the pool. I will and can do this at home but at someone else's house it may be impossible to do it immediately following. Not to mention that I am not sure if I could always do it immediatly following her swims at home either.

She usually hits the pool everyday starting in April and I just cannot take this away from her.

I have already placed the chlorine filter on her shower head....I didn't have the water checked (we do not drink it) but I just installed it on there anyhow to be safe. It was cheap at lowes and worth its weight in gold as far as the worries.

 

Longer than I wanted here...sorry....just need help understanding the system I have for our pool and if an iniozer is needed and will work with our current pool system.

Also sorry for the mispelled words.....type ahead of myself and cannot get the spell checker to work on here.

 

Thanks in advance for everyones advice and help

[P_Mom]

HI!

I just wanted to share our experience with pools. Well, as you know we are dealing with PANDAS, and my boys were invited to a pool party a few months age at an indoor pool. I was nervous about it after reading posts here, like you are,but, I wasn't gonna to keep them from it either, I understand that. Well, I couldn't go so my husband took them. He said while they were waiting for everyone to show up, (they got there too early), the boys had very mild stuff going on, then he said another boy showed up and he noticed the little boy had some pretty substantial facial tics going on the whole time they were waiting. He said as soon as they all started swimming, all 3 boys never ticced once, even the little boy with lots of tics. He said he was watching all three carefully, not one tic! I have noticed when my kids are in the bath tub or playing with water etc., they never tic and are in good spirits, especially after baths...this was really apparent when my younger was in his bad period, he'd be great in the bath and great for awhile afterward. I am wondering, does the water increase serotonin, the feel good chemical, and therefore improve mood and tics? Just a thought, anyway, hope this helps... no tics for us with a pool and chlorine.

[ilovedogs]

Just wanted to let you know that we have a pool and I was worried about the same thing. I do keep the chlorine levels as low as possible b/c I have reactions to chlorine(I get bloated and an upset stomach). So, I keep it just under 1.00PPM and then shock it to get it back to 2.0PPM if we're having algae or environmental debris problems from wind, etc. On the day after I shock I require everyone to shower after having been in the pool.

 

Here in AZ, it's the same thing with pools. Everyone has one and b/c it's so hot here in the summer it's the only diversion the kids have! I also will not take that away from him. But, I was curious about the ionizers and would love to know what you've found out. I'd love to get rid of using chlorine in the pool!

[faith]

Is chlorine and pools something that we all should be worried about? I mean, I don't really recall seeing anything adverse happening when my son was in a pool during our summers or on vacations, so does that mean it is not really an issue? But then again, we don't have a pool, so his exposure is only when at a a friend's house or community pool or vacations. Now I am wondering, because I was thinkiing of putting in an above ground pool this year, but worry now that this will mean more exposure to chlorine and then it MAY be a problem (I sure don't need anymore ). I'd hate to spend all that money and then have problems.

 

I mean, we have ample opportunity to go elsewhere like beach and community pool when it gets hot in summer, but my son is now of the age where he doesn't want to trek around with his mom, he wants to be with his friends, so I thought this would be a good idea so when friends are over, they will have something fun to do all summer. What do you all think? I mean is chlorine a definite no-no?, or just for some. Again, I don't really recall and increase in symptoms during summer, actually the opposite, but maybe I wasn't really looking.

 

Faith

[81lumberjack]

For us, we worry about chlorine because we know our son does not detoxify chemicals very well. Too much chlorine actually disturbs the copper/zinc ratio in his body and manifests outwardly in the form of non-typical behaviors. We have been on the trying to figure a solution to chlorine journey for 6 years.

 

We put a salt based pool in last summer in part because we know we have a history of undesireable issues with chlorine. Community pools will typically have chlorine at 5 ppm to maintain safety with the large swimming load they have to meet. As I said in an earlier post today, we are able to maintain .5 to 1.0 ppm chlorine and we do just fine. Again, we also supplement with 500-1000mg of vitamin C before and after we go swimming per our DAN doctor.

 

Thanks

 

Walt

 

 

 

 

 

 

 

 

Is chlorine and pools something that we all should be worried about? I mean, I don't really recall seeing anything adverse happening when my son was in a pool during our summers or on vacations, so does that mean it is not really an issue? But then again, we don't have a pool, so his exposure is only when at a a friend's house or community pool or vacations. Now I am wondering, because I was thinkiing of putting in an above ground pool this year, but worry now that this will mean more exposure to chlorine and then it MAY be a problem (I sure don't need anymore ). I'd hate to spend all that money and then have problems.

 

I mean, we have ample opportunity to go elsewhere like beach and community pool when it gets hot in summer, but my son is now of the age where he doesn't want to trek around with his mom, he wants to be with his friends, so I thought this would be a good idea so when friends are over, they will have something fun to do all summer. What do you all think? I mean is chlorine a definite no-no?, or just for some. Again, I don't really recall and increase in symptoms during summer, actually the opposite, but maybe I wasn't really looking.

 

Faith