PANDAS -- second occurence and later

[kkver]

I will like know how long the tics/ocd last lasts in second and later times in Panadas kids. My 5 year old came down with strep second time ( in fact all 4 in our family ) and sure enough tics have returend with shoulder shrugs. He had 1st episod of tics starting in last march witch ended by may end and now i can see him ticcing. Second has any one started some preventive treatment for this or any regular treatment.

 

thanks

[faith]

kkver,

do you mean right now he has or just had the strep and all you are seeing is a shoulder shrug? I would think symtoms would be quite more dramatic if PANDAS? Forgive me, I can't remember offhand, he's not on any antibiotic now, right? ...

 

I can't answer your questions accurately as I don't think we are in PANDAS boat, however, I do want to say that although we had negative titers, I don't believe my son actually had any cases of strep or a real sore throat since last year and a half. (my son does have tics on a pretty regular basis, tho I would not call it severe.) So I wanted to ask those of you that also seem to test negative for the PANDAS, HAS your child had a strep episode and NOT reacted with dramatic symptoms? See, I don't really have that experience to know--I'm always watching for it and wondering if I should connect his ticcing to that, but he's never really had a second bout of strep for me to know. So can anyone relate to that?

 

Faith

[kkver]

This is his second round of tics. First tics came right after strep infection in march and lasted around 2.5 months or so. After that he was tic free and was never on any preventive antibiotics. Even in september he had viral infection which came and went through witout any tics. This time last week we all in our family had strep i think my daughter got it from school after thanksgiving . he was started on antibiotics ( zithromax) and now i am seeing his shoulder shrugs. Last time it were very bad both motor and vocal ( head shake + hmmmmmmm ) and leg bending and some more . He finshed his antibiotic 2 days ago so i am keeping my fingers crossed. I was told Even if titer count is low and negative it can still be PANDAS. right now there is not much docs around who have knowledge about it but i belive this board have lot of people who are activelty looking for answers for this .

 

Second some time a very mild sore throat also has +ve strep. I remeber i went ot doctor earler this year for my wife and i was hving a very mild sore throat so just told them to check and it turned out to be +ve. Now i keep the strep test kit at home so it is faster and easier.

[P_Mom]

KKver,

I am hoping your son does well now that he is finished with the antibiotic. Please let us know if anything else develops. My son has had two strep related episodes of tics/ocd, the secong one was bad, but ,we weren't aware of PANDAS then, and antibiotics weren't started until 4 days after strep, plus, it wasn't wiped out in first round of antibiotics, so, I believe his antibodies just kept going up and up. I am curious how the tics/ocd are controlled when given an appropriate antibiotic within a couple days of infection. Does it keep the PANDAS to a minimum, or does it get bad again? Thanks, I'll be checking for your post and hoping your son does well.

Kelly