Best forms of supplements

[Laurie in Az]

My son just did the zinc Status test. He came out moderately deficient with a recommendation of 100 mg. a day. He has been getting 74mg a day from all non-food sources combined for over a year. I don't think that he absorbed any of it! He was recently retested for pyroluria and it came back a 20. This is borderline according to the lab. I have just started him on digestive enzymes and betaine HCL. I am now questioning if he is absorbing any of the supps that I am giving him. I switched to Zn picolinate and am looking at zinc creams. Has anyone used zinc sulfate cream or zinc cysteine cream? How long before I retest him with the Zinc Status test to see if his Zn levels have increased? I'm also considering going to liquid B6. He currently takes a combination of B6 and p-5-p in pill form. Has anyone used liquid B6? I'm feeling discouraged.

 

Laurie

[kim]

Laurie,

 

See if there is any help here

 

http://f1.grp.yahoofs.com/v1/EGxLR1Xjn4lcU...cpicolinate.pdf

 

If you find something, please post the important parts. It's been a while since i read it

 

I also JUST realized that the zinc picolinate that I have been using with my youngest son has 2 mgs of copper in it. I was so happy to find the picolinate locally 30 mg. dose, that I missed the fine print.

[Caryn]

Laurie,

Did you test your son for allergies? Specifically gluten intolerance or wheat?

OMG!

Is he also low in iron, even with iron supps?

Is he high in copper?

Let me know!!!!

Caryn

[Laurie in Az]

Laurie,

Did you test your son for allergies? Specifically gluten intolerance or wheat?

OMG!

Is he also low in iron, even with iron supps?

Is he high in copper?

Let me know!!!!

Caryn

 

 

Hi Caryn,

He did have the test for celiac sprue 4 yrs. ago. It came back negative. He has been wheat free for at least 3 yrs. Ditto for dairy and corn. I'm beginning to look at yeast and phenols. His allergic shiners have never gone away. He has no respiratory problems, no stuffiness. No allergies with the traditional scratch test. I need to get his other minerals tested. I'm very frustrated. I'm thinking leaky gut and yeast. His dad's family is full of autoimmune disease and allergies. The pyroluria is probably from my family, maybe both families. The only TS that we know of are a child of a first cousin on my mother's side and one on my father's side. He's obviously not absorbing the zinc. I'm beginning to wonder if he is absorbing anything. I'm doing alot of reading on the "Enzymes and Autism" site. I'm not sure how many direct parallels can be drawn between TS and Autism.I do think that the digestive enzymes and yeast protocals could be helpful.

 

Laurie

 

Hi Kim,

The link didn't work.

 

Laurie

[Caryn]

Laurie,

Are you just wheat free, or gluten free?

I ask this because I originally went wheat free and only saw a mild improvement in my son and relied on the supps to keep him 'stable' if you will. It wasn't until I joined a celiac forum and they encouraged me to go gluten free, and taught me how to do it, that Tigger saw such a tremendous improvement. I got really curious and started to research the whole gluten free issue. I have recently been in contact with a pediatric gastroenterologist from New Zealand named Dr. Rodney Ford

who also noticed the same patterns in his patients over his twenty years of practice. He has written several papers and books; his latest book looks at neurological manifestations. I have ordered it but have not received it yet. He personally told me he has seen patients with tics and epilepsy improve on a GF diet. We experimented with different enzymes too. I can honestly say that after six months on the diet my ds is pretty stable. We see mild relapses when he gets food with gluten or corn. Other than that he is stable every day. There is no wax and wane to speak of. No OCD symptoms. He is only 4 so I have a good handle on what he eats and can monitor very closely (not in school yet, doesn't go to friends' houses to play independently). I am dying to find someone else who has gone gluten free and seen results like this.

Caryn

P.S. the odds of testing positive for celiac sprue are quite rare 1 in 100. According to Dr. Ford 1 in 10 of us are gluten sensitive, to varying degrees. New research is suggesting that gluten intolerance is not a small intestine issue but one that attacks the central nervous system!!!

[kim]

Laurie,

 

The link is working now.

 

Also, in regards to your remark (let's see if I can not screw this up)

 

I'm not sure how many direct parallels can be drawn between TS and Autism.

 

I'm not sure about direct parallels, but i think it's safe to say, some very common ground.

 

http://www.medicalveritas.com/MarthaHerbert.pdf

 

 

Is there a genetic overlap between autism, Tourette’s, and autoimmune disease?

 

 

Oh, it’s interesting, there’s a lot of work that goes on in autism research on what’s called “comorbidities.” So many of the psychiatric autism researchers will study overlaps between say autism, obsessive compulsive disorder because of the possessiveness, tic disorders, because of the repetitive movements, and so forth. But Kevin Becker who’s a scientist at the National Institutes of Health did a very interesting study where he over-laid the genomes—the areas of the genomes on the different chromosomes where findings have been identified, and he did it for autism, Tourette’s, and autoimmune disease. He’s also done it in other areas like diabetes in other papers. He found an enormous amount of overlap to the point where you wonder what is it that, given so many similar genetic vulnerabilities, leads one person to be autistic and another person to have Tourette’s. Because it looks like there’s a whole set of shared vulnerabilities. And in other work that Dr. Becker has done – he has a very interesting paper called, Common Variants, Multiple Disorders – basically showing that a whole set of genes can contribute, presumably through vulnerability-type mechanisms, to dozens of diseases. These genes are not specific for any one disease. They set you up for something more generic. Autism, Tourette’s, and autoimmune disease all potentially have immune system contributions. So that may be one piece of this. I don’t think they really fully understand all of it. But, we are learning these days that inflammation is a common feature in an incredible range of diseases that we didn’t appreciate before. Even heart disease and obesity have a substantial component of inflammation.

So, I think that our ideas of what causes disease and what is specific about a disease definition are going to have to undergo a substantial change. This is something that an area called “functional medicine” talks about a lot. It talks about the differ-ences in function and highlights how blurry the boundaries are between disease entities and how much overlap there is in many of the biological or pathophysiological features underpinning what goes on as a person gets worse in many of these disease processes, including autism.

[petb]

Laurie,

Are you just wheat free, or gluten free?

I ask this because I originally went wheat free and only saw a mild improvement in my son and relied on the supps to keep him 'stable' if you will. It wasn't until I joined a celiac forum and they encouraged me to go gluten free, and taught me how to do it, that Tigger saw such a tremendous improvement. I got really curious and started to research the whole gluten free issue. I have recently been in contact with a pediatric gastroenterologist from New Zealand named Dr. Rodney Ford

who also noticed the same patterns in his patients over his twenty years of practice. He has written several papers and books; his latest book looks at neurological manifestations. I have ordered it but have not received it yet. He personally told me he has seen patients with tics and epilepsy improve on a GF diet. We experimented with different enzymes too. I can honestly say that after six months on the diet my ds is pretty stable. We see mild relapses when he gets food with gluten or corn. Other than that he is stable every day. There is no wax and wane to speak of. No OCD symptoms. He is only 4 so I have a good handle on what he eats and can monitor very closely (not in school yet, doesn't go to friends' houses to play independently). I am dying to find someone else who has gone gluten free and seen results like this.

Caryn

P.S. the odds of testing positive for celiac sprue are quite rare 1 in 100. According to Dr. Ford 1 in 10 of us are gluten sensitive, to varying degrees. New research is suggesting that gluten intolerance is not a small intestine issue but one that attacks the central nervous system!!!

 

 

Caryn,

 

which celiac forum did you join? My son tested negative for glutten. so we have stopped wheat but not spelt;. He eats spelt bread a few times a week. It is hard to substitute bread. Lunch is my challange.

 

But I do think if i cut all glutten out I would see more improvement. It seems so hard. But you mentioned a site that help teach you how, I would love to learn how.

 

Thanks

petb

[Caryn]

which celiac forum did you join? I joined a few, some I just lurk in. Celiac.com has a whole bunch to choose from at: http://www.glutenfreeforum.com/. I also visit Braintalk by hastypastry. They have a group that discusses neurological manifestations due to celiac/gluten intolerance. http://brain.hastypastry.net/forums/forumdisplay.php?f=152. My son tested negative for glutten. What kind of test? Was it a IgG-gliadin antibody test? That is the best kind according to Dr. Rodney Ford, a world-wide expert on the gluten syndrome (pediatric gastroenterologist). So we have stopped wheat but not spelt; (yes, and I'm sure you know that spelt has gluten). He eats spelt bread a few times a week. It is hard to substitute bread. Lunch is my challange. We rely on Pamela's Gluten-free bread mix. I just pop it in the bread maker. It is great for sandwiches, you just have to be careful not to put too much water in it. I never add the extra 2 tablespoons as per the package directions. I buy in bulk from Amazon to save $. http://www.amazon.com/Pamelas-Products-Whe...nutrition-facts

 

But I do think if i cut all glutten out I would see more improvement. It seems so hard. But you mentioned a site that help teach you how, I would love to learn how.

here is a good starting point. This page offers a lot of links: http://www.gflinks.com/. This can help you learn a bit more about all the hidden names of ingredients and what to look out for. Also, if you have a Whole Foods nearby you can ask for concierge service (for free). A representative will give you a tour and offer products for you.

Caryn