kim Posted October 9, 2007 Report Share Posted October 9, 2007 Way to go airbucket! Can you elaborate on what you said to your Dr? Was he aware of this test? I know Claire had the french test, that is supposed to be quite comparable. I'm not sure of what the differences are. I will pull up that thread, when I have a little more time. There is also a family that does "rescue angle" work. I'm pretty sure, I can get a little info. from them on helping to understand results, although, I do think, currently, more parents have info. on the french test. Hopefully, it will give you a straight forward high, med, low, range. I think that it covers other metals too, but not sure if it's spelled out, or if it takes deciphering. I sure will help in any way I can! Since this is a test that insurance will cover, it could be helpful to many PLUS we know there is no possible harm to our kids, since it involves no chelating agents. I'm not against a challenge test necessarily, just would want a very experienced Dr. and we don't have any near, that I can find. What type of Dr. ordered the test? edit....I just went back to your post, and saw it was a Ped. DOUBLE WAY TO GO!!!! Just getting him to order that test was quite an accomplishment. I'm wondering if they will collect urine, in the afternoon/evening though? I'm pretty sure the french porphyrin test is first morning urine, and needs to be kept in the dark. Maybe the tests are not the same. Hopefully, it will provide something useful though! You may want to call the lab first. They might just send you home with a urine collection kit. If that's the case, your son would probably not even have to go, unless your having other tests at the same time. Odds are, the people at the lab will have to read through collection instructions too. Watch this! I found horrible confusion about food IgG testing through a standard lab like that. They were NOT at all familiar with the test, coding etc. Make sure the test is done properly. Link to comment Share on other sites More sharing options...
airbucket Posted October 10, 2007 Report Share Posted October 10, 2007 hi kim! I just saw this thread (?), i wish i had more time to pour over this forum, i am dying for info!!! anyway, i am too excited about the test, but to be honest i dont understand it too well. the pedicatrian had NO idea what it was but said ok anyway. I will call the lab first, excellent suggestion. i do not when the urine should be taken. wonderful point. i do not know what rescue angels is? I still dont know what im going to DO with the results other than search for someone who can interpret them. We are going to labcorp on friday for this, of course i will keep the forum posted! I really appreciate your offer to help, i am running blind but better than not running at all. right now i have to go because my son is sitting on the couch grunting and jerking his head non stop, the newest tic, and its driving me nuts, so more later! And thank you so much! i just came back to edit this to make the point that anything "alternative" that we've done for my son (which so far hasnt been much but will be) has come through pretty much demanding that the forces that be cooperate, just like with the school system, so with the pediatrician. i wont take no for an answer if my request is within reason. Also, on another note, i am interested in researching the connections bewteen gasto problems and tics/TS. Way to go airbucket! Can you elaborate on what you said to your Dr? Was he aware of this test? I know Claire had the french test, that is supposed to be quite comparable. I'm not sure of what the differences are. I will pull up that thread, when I have a little more time. There is also a family that does "rescue angle" work. I'm pretty sure, I can get a little info. from them on helping to understand results, although, I do think, currently, more parents have info. on the french test. Hopefully, it will give you a straight forward high, med, low, range. I think that it covers other metals too, but not sure if it's spelled out, or if it takes deciphering. I sure will help in any way I can! Since this is a test that insurance will cover, it could be helpful to many PLUS we know there is no possible harm to our kids, since it involves no chelating agents. I'm not against a challenge test necessarily, just would want a very experienced Dr. and we don't have any near, that I can find. What type of Dr. ordered the test? edit....I just went back to your post, and saw it was a Ped. DOUBLE WAY TO GO!!!! Just getting him to order that test was quite an accomplishment. I'm wondering if they will collect urine, in the afternoon/evening though? I'm pretty sure the french porphyrin test is first morning urine, and needs to be kept in the dark. Maybe the tests are not the same. Hopefully, it will provide something useful though! You may want to call the lab first. They might just send you home with a urine collection kit. If that's the case, your son would probably not even have to go, unless your having other tests at the same time. Odds are, the people at the lab will have to read through collection instructions too. Watch this! I found horrible confusion about food IgG testing through a standard lab like that. They were NOT at all familiar with the test, coding etc. Make sure the test is done properly. Link to comment Share on other sites More sharing options...
kim Posted October 11, 2007 Author Report Share Posted October 11, 2007 airbucket, Well, I came up with a little info to get us started on getting familiar with the labcorp test, lol. Porphyrins lab corp test # (CLIA-certified, Test#120980) http://www.mercury-freedrugs.org/docs/LabC...nformation1.pdf http://www.ncbi.nlm.nih.gov/sites/entrez?d...;indexed=google Message to Boyd Haley http://www.mercurypoisoned.com/news/urine_...hyrin_test.html http://www.mercury-freedrugs.org/ Boyd Haely questions and answers http://onibasu.com/archives/am/186321.html http://toxsci.oxfordjournals.org/cgi/reprint/61/2/234.pdf I almost posted (in the wee hours of the morning) that "rescue angels" were the little people who flew around my familyroom, and asked if others don't see them? But, I thought of those who just stop by occasionally, and thought better of it. Sometimes I have to lightening myself up, and allow my devilishness out for a moment. Anyway, Rescue Angels are a network of people who volunteer to help other parents with education regarding biomedical treatments, mainly in regards to autism. The Mom and Dad that I was speaking of, frequently host people from other countries, who bring their children here for recovery. The "mom" is the moderator of a website that I read often. Link to comment Share on other sites More sharing options...
kim Posted October 13, 2007 Author Report Share Posted October 13, 2007 Airbucket, Just wondering how your trip to the lab went? Link to comment Share on other sites More sharing options...
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