Candida protocol for child with tics

[Mamaknowsbest]

Hi all! I have read many forums about Candida on here. I was looking for some thoughts on my 8 year old daughter’s case in particular. She’s had mostly mild tics for almost 2 years. A few times they ramped up a bit, which scared me into visiting a functional pediatrician. She suspected and confirmed via an OAT that my daughter had raised Arabinose aka intestinal candida overgrowth. It was also noted she had a high IgE (40) indicating a non-celiac Gluten Sensativity. I am a few weeks into our regimen which consists of various probiotics (Seed, Sacch B., Terra Flora), bio-film busters (biocidin and Lauridicidin), and Nystatin 3x daily. I’ve been aware of sugar count, trying my best to be GF (the holidays made both a little tricky) and watching our seed oils. Do you think this seems like a good line up?? Anything you see issue with? The first few weeks she was veryyy itchy, but I see that decreasing a bit starting 3 days ago. The rash near her private area is still visible but a but less itchy too. She is no longer having night sweating. But the tics still wax and wane which has me discouraged. I know we’re only about a month in (not quite since I was titrating) but I’m just feeling worried. My end goal is that I can help heal her gut so she can eat gluten without care and for her to be tic free. I don’t know if she has any other sensitivities btw. I do not notice anything after she eats gluten. But perhaps it does have a neurological effect but nothing digestive. I need more time to be GF to study how she is free of it and then add it back in. I know her doc is somewhat curious to run a mycotoxin test on her but I’ve just been trying to give her a break from feeling prodded. I don’t think our house seems moldy at all but I guess you never know.
Her tics don’t bother her (too much) so I don’t have an overly motivated patient. She thinks I’m just doing a lot of this for her overall health and immunity. We don’t speak of the tics often or really ever. If anyone has any thoughts or words of encouragement let me know!! I’m hoping the tics are just persisting because her body is still fighting the good fight with the candida toxins and healing still has to be done. 🙏 

 

btw she also shows high Oxalic acid and low B6, which apparently are common with Candida overgrowth.

Edited January 2 by Mamaknowsbest
More info added

[Atex]

It took us a good 6-12 months to heal our daughters gut from a long term dietary allergy.  The tic improvement lagged the gut improvement by a few months. While hers was dairy and maybe gluten allergy, I would not be surprised it if took yours just as long.  Our naturopath also had her taking NAC as a way to help healing; whether or not its appropriate for Candida would need to be discussed.

[Mamaknowsbest]

@Atex thank you for your reply! My “gut” is we have to be making some progress but I still haven’t seen many results from it which makes me feel discouraged. We are new in the journey though so we will just carry on and keep praying. 🙏 

[Mamaknowsbest]

@Alex also if you don’t mind, how was the dairy allergy determined? What were the signs? Did you have to avoid all forms? Cheese? We buy A2 milk, eat Greek yogurt and cheese. Was lactose free cheese tolerated?

[Atex]

Not to get too graphic, but it was loose stools a few times a week over a period of a few years.  Pediatrician's repeated response was "It's no big deal, we're just glad it's not constipation".  I want to say that the loose stools came before the tics started around the kindergarten age (started with eye blinking).  The symptoms were our first clue, then we had an IG panel run which showed elevated response to a few things, including dairy (i wouldnt put too much stock in an IG panel however).  Ultimately, we did an elimination diet under the direction of a naturopath and dietitian (my wife), and the stools gradually got better over a period of months, so that was really our confirmation.  Supposedly celiac's also have a long heal time so I think in general if the gut is angry it takes awhile.

She does NOT tolerate lactose free cheese and milk and that was a good challenge test after the elimination diet.  I think that means something but haven't researched it too much.  I made a thread about this the other month where she's been tic free for awhile now and we tried lactose free milk and it triggered loose stools and tics. 

She regularly has dairy free cheese, butter, and milk without issue.  Cheeses usually by Violife or Daiya.  Butter is by Melt Organic or Earth Balance.  Milk is usually original almond milk.

Edited January 9 by Atex