KSandy Posted June 16 Report Share Posted June 16 Does anyone have any insight or experience with a strep-positive PANDAS kid getting frequent nose bleeds? It only happens at night while she's asleep. I have her using a nasal spray and a humidifier, but so far I can't tell if those two things are helping. Her neurologist has no advice except to try a humidifier and take her to an ENT if that doesn't work (I assume the ENT won't know anything about PANDAS). If strep can live in the nose, could that cause nose bleeds? One of her motor tics is to forcefully blow air out of her nose...could that be her body trying to expel what it perceives to be a bacterial threat? Link to comment Share on other sites More sharing options...
Atex Posted June 17 Report Share Posted June 17 Just make sure you're aware of the use of nasal sprays and resultant rhinitis medicamentosa as I understand that it can make nose bleeds worse. Ayr Gel worked for my bleeds and coats the nose even after blowing. Link to comment Share on other sites More sharing options...
KSandy Posted June 24 Author Report Share Posted June 24 Her ped suggested nasal spray first, followed by vaseline, but I opted for spray then an aqueous gel Link to comment Share on other sites More sharing options...
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