Pennmom Posted October 4, 2022 Report Posted October 4, 2022 (edited) My daughter started battling PANS 3 years ago. We went to a specialist that gave her antibiotics for more than 8 months. I truly regret this length of time; especially since it did not seem to help as much as we would have thought/hoped. About 2 years after this started, we went to a functional medicine CRNP. She gave us a list of supplements for our daughter to take that helped dramatically within one week! We still have our ups and downs, but these supplements made a big difference, much more so than all the antibiotics. These are the supplements: Omega Longevity (Aceva) 1/2 teaspoon per day The Extinguisher (Mechanism Wellness) 1 per day 2,000 IU's vitamin D3 Probiotic (we used Culturelle kids packets; one per day) Multivitamin (we used Flinstone gummies) RelaxMax (Xymogen) (half a capful per day at 10 years old) We used these supplements for about one year. We now adjust as needed. I truly hope and pray that these supplements can help your child as they did ours. Blessings PS There was also a supplement recommended called Copa Calm by Ortho Molecular. I think the nurse practitioner said one or two drops per day as needed. I did use this during a really bad flare and it was helpful. I did discontinue after that week when things settled down. My daughter's cheeks were flushing and I read that it can be from too much GABA. It really helped, but I believe only wise to use for occasional, serious flare ups. Edited September 9 by Pennmom
FraggleRed Posted October 20, 2022 Report Posted October 20, 2022 I’m going to try the relaxmax. thanks!
Pennmom Posted November 5, 2022 Author Report Posted November 5, 2022 (edited) All the best! Edited September 9 by Pennmom
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