BeeRae22 Posted March 13, 2020 Report Posted March 13, 2020 2+ years at baseline. Symptom free. Then bronchitis. Now... full blown Pans symptoms. Again. I don’t know that I can do this. Again. someone please help.
AlwaysWorriedMom Posted March 14, 2020 Report Posted March 14, 2020 I’m so sorry This disease really is so frustrating, because when things are going well, we’re constantly watching and waiting for the shoe to drop...and when things are not going well....life is just terrible We are pretty new to PANDAS so I’m not the best person to give advice for what you should do, but I’m sending you love and support and I hope your child gets over this episode quickly.
Pennmom Posted March 20, 2020 Report Posted March 20, 2020 I am very sorry. PANS is hard enough without the coronavirus problem on top of it. I am thinking of you. Have you reached out to a specialist?
MaryAngela Posted March 21, 2020 Report Posted March 21, 2020 @BeeRae22 What treatments are you currently using? I may be able to offer some suggestions.
Cmac Posted June 11, 2020 Report Posted June 11, 2020 I feel your pain. After a year of pretty much no symptoms--all of a sudden intrusive thoughts have popped up again out of "nowhere" again. I'm awaiting the results of a strep culture (the rapid test was negative) but am wondering what else it could be. I just really, really, don't want him to back "there' again.
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