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Posted

I was wondering about suggestions for anti inflammatories. I can't find anything that works like advil- advil even works better for my son than all the ivigs he has had. Curcumin and fish oil increase his sympt

Posted

Search "anti inflammatories" once you are in this group.  There are more than 10 pages of hits.  Some have described turmeric as doing really well.

  • 2 months later...
Posted

Rlz already mentioned curcumin.

Any luck, Rlz?  I'm wondering too.  Curcumin doesn't seem to do it for me, we've tried both a proprietary extract (Pure Encapsulations) and just turmeric powder stewed up with butter and pepper.  Ibuprofen does seem to do me some good, but I can't tolerate that daily for more than two weeks at a time (stomach).  Practitioner wanted to prescribe Celebrex (celecoxib) but I'm hesitant, not clear how safe it's currently thought to be and does it work (for PANS)?

Posted (edited)

I use cayenne pepper. It's pretty spicy and isn't for everyone. I like to make some bone-broth and put like a tablespoon of cayenne it, and usually chug it. Some people make a tea out of it and that isn't bad. I usually like to drink it fast because it likes to float to the top. I use cayenne tinctures too, but they can burn.

Just an idea. Not for kids though. 

Edited by lordchallen

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