PANDAS - Denied Second Round of Antibiotics

[Bttrfly1]

Hi,

I just got back from our pediatrician's office about my DS. He started acting off (btw - no one noticed except for me for a few weeks!). Symptoms were frequent urination and then this breathing thing, where he's also sucking in air (deep breaths and air hunger). I encouraged Dr. to do a strep test because I saw something about PANDAS on my facebook page. Dr. did it and throat culture and blood test showed positive for Strep A. He got on a 10-day course of Cefrin? Urination kind of got better to the point where I don't obsessively watch for it but in exchange the breathing is now worse. We went back today for a follow-up and I asked for two courses on a different antibiotic. Dr. refused and said she would only treat if he tested positive on throat culture. I also requested appt. with Dr. latimer to rule out or treat him for PANDAS but that isn't until June 6. Is there anywhere I can go to treat sooner? Dr. Walsh in Leesburg - or a empathetic dr. who will diagnose? Please send me recommendations. There has to be more doctors out there.

Thx

[mpsloan]

Dr. Azam Baig he has offices  one in Edgewater, Maryland (Annapolis area). He is PANDAS /PANS friendly. He treats my two sons for PANDAS, as well as many other patients with PANDAS/PANS. 

Edited May 9, 2017 by mpsloan

[Gpookie]

Yes. Dr. Baig is excellent. He's our pediatrician. We live 5 minutes from his office.  He's in the Edgewater office on Wednesday and Friday.

Edited May 9, 2017 by Gpookie

[Bttrfly1]

that's wonderful! we live in Fairfax, va. Anyone closer? Also I'm new here.. is there a connection between PANDAS and Lyme?

[Bttrfly1]

What about David Band? He's one of the recommended drs. in the northern Virginia area. We don't want to wait to see Dr. L. Any experience with him?