Mamafour Posted February 20, 2017 Report Share Posted February 20, 2017 Hi there, I've never posted here before but for over a year have read and reread posts here. My daughter is 9 and has PANDAS. I suppose it may be Diagnosed as PANS this year as her flare up was caused by mycoplasma. The reason I am posting is that I struggled to find a doctor or hospital willing to try ivig for us when abx failed. We are close to D.C. but didn't have the funds to pay out of pocket at Dr. latimer. I finally found an immunologist at VCU and we just completed plasmapheresis. We are finally getting our daughter back. It's amazing. I am posting only because I know how desperate and hard the search is to find a doctor, especially one who takes insurance. I wanted to spread the word if there is anyone in VIrginia needing treatment for PANDAS. Link to comment Share on other sites More sharing options...
lw47 Posted February 20, 2017 Report Share Posted February 20, 2017 Can you tell me the name of the immunologist please? I have a friend that has a daughter that may need plasmapheresis. Thanks! Link to comment Share on other sites More sharing options...
pittardm Posted May 8, 2017 Report Share Posted May 8, 2017 I would like to know the name of the immunologist in Virginia as well. Thank you. Link to comment Share on other sites More sharing options...
Mamafour Posted May 10, 2017 Author Report Share Posted May 10, 2017 It is Dr. Wei Zhao at VCU/MCV Children's. Our daughter is about 3 months out from plasmapheresis and doing so well. Link to comment Share on other sites More sharing options...
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