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Is there a list of doctors to never go to, because I'd like to add one


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I am sorry to hear about your experience, and it must have been incredibly disappointing to be treated in that manner. Sadly, I count myself among many parents here who go through similar experiences as we try to locate a doctor who is credible, knowledgeable, and helpful. Once you find a good doctor, one who listens, things will get better.

 

I have used sites like vitals.com and healthgrades.com to research doctor ratings. Those sites might be worth a look for leaving feedback about your experience.

 

Regarding your daughter, have you considered seeing an immunologist or infectious disease specialist? It may be helpful to run some blood panels and look for signs of chronic infection. We did just that in the past, and we used those results as validation that an active chronic infection existed. Regarding the comments the doctor made about autism, he doesn't seem credible on the subject.

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This is beyond unacceptable. Do not pay any bill where a doc treats you, your child or your concerns this way.

 

Get to a DAN/PANS/PANDAS doc sooner than later.

 

REPEAT.....DO NOT PAY ANY BILL WHERE A DOC DOES THIS. TELL THEM YOU HAVE NO INTENTION OF PAYING.....IF IT GOES TO COLLECTIONS....STAND FAST AND DO NOT PAY AND TELL THE COLLECTION AGENCY WHY YOU ARE NOT PAYING.

 

They will get it and no pursue it....unless they are really big jerks.

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