kimberley13 Posted May 9, 2016 Report Share Posted May 9, 2016 My daughter has had severe tics for about 10 months. Her peds suspected PANDAS. Her ASO test came back high. He put her on Omnicef and it was like a miracle. Every symptom went away. 2 days after she stopped the medication her tics came back and within 2 weeks were worse then before. He then tried Amox which did nothing. I pretty much begged him to try Omnicef one more time and she has only been on them 3 days and already almost all tics are gone. He said this antibiotic is too strong to continue and that he wont write another script for it and I need to see a specialist. I'm so scared on what is going to happen when we stop this medication this week. I live on the east coast of Florida but will travel anywhere. Does anyone know of a doctor? Link to comment Share on other sites More sharing options...
lw47 Posted May 9, 2016 Report Share Posted May 9, 2016 Dr. Tanya Murphy Link to comment Share on other sites More sharing options...
airial95 Posted May 12, 2016 Report Share Posted May 12, 2016 Are you on Facebook? There is a Florida PANDAS Parents FB page that has a list of doctors in Florida. There are lots of folks on there from the East Coast that can help too. The link to request to join is https://www.facebook.com/groups/FloridaPANDAS/ I'm the admin so let me know if you request. Link to comment Share on other sites More sharing options...
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