PANDAS-aware neurologist in the DC metro area/East Coast

[nitshel]

Hello- just reposting.

 

We are trying to get with Dr. L - but given her schedule - do you know of any other neurologist in the East Coast?

 

Happy to travel, if needed.

 

We are trying to get to an IVIG prescription - think its time! Anyone have any good suggestions.

 

Thank you for your help.

 

 

[mommybee]

Mass General Hospital has an excellent PANDAS clinic. Dr. Leckman at Yale would be another excellent choice. Both practices have waiting lists but would provide the same kind of hospital resources should something go wrong that you'd get through Dr. Latimer's practice.

Dr. Bouboulis in Darien, CT is another possibility. His diagnostic skills are good and he also happens to hand out IVIG like candy. However, treatment occurs in a transfusion center and you're sort of on your own if your child has a bad reaction after hours. Dr. Bouboulis also doesn't have coverage when he's away and getting through to his office even during regular business hours can be very difficult. (His office staff takes a two hour lunch break!!).

[Anne]

Hello!

 

New member here looking for a PANDAS specialist recommendation in the Houston area or even Texas-wide. Our daughter was diagnosed in early 2013, and her treatment has been unsatisfactory, to say the least. Actually I'm going to revise the search area to anywhere in the US! We want her well...