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Found 3 results

  1. Well, we met with the local pedi neurologist, and I was disappointed -- and then pissed and worried. First, he hadn't heard of Dr. Thienemann, one of the authors of the PANS consensus committee, and a founder of the Packard (Stanford) PANS/PANDAS clinic. (She gave the PANS dx). And this neurologist did even fewer of the basic neurological tests that ds16's pediatrician did years ago. And based on that he concluded that: there was no peripheral neuropathy (duh) no problem with his thalamic neurological system (whatever that is), and no generalized pain syndrome, and thus no reason for
  2. Hello- just reposting. We are trying to get with Dr. L - but given her schedule - do you know of any other neurologist in the East Coast? Happy to travel, if needed. We are trying to get to an IVIG prescription - think its time! Anyone have any good suggestions. Thank you for your help.
  3. We were supposed to leave Florida monday and see Dr. N tuesday but the receptionist just called and said we have to see a "Dr. Derek Chong". He has good ratings online and 3 very good reviews, but I don't know anything about him. Any advice would be welcome. My mom can't reschedule everything, she works full time as R.N. in busy hospital. WE have rented a loft as well. Can't say I'm not disappointed. He is board certified in neurology, psychiatry, and sleep medicine, which is GOOD. Can anyone give any advice in dealing with this situation? One time I was supposed to see a
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