24 hours off augmentin fever and fear return

[sarojane]

So this is our first time getting off abx since diagnosis. She was on augmentin 500 2x a day for 14 days. We asked pediatrician to renew until appointment the 2nd of June to no avail.

 

She now has a fever of 101 and fearful and panicked again. Also leg pain half the day. I called the answering service in tears. Does this happen all the time?

 

I still think she had rheumatic fever originally. Our family on both sides are susceptible.

 

I had give her high dose curcumin earlier so I think ibuprofen is out of the question. I also gave her hemp cbd oil and her mood all of a sudden seems better.

 

Any ideas? Comforting words. Also my birthday today and husband in Atlanta for work.

[pr40]

if there is any indication of rheumatic fever, your dr is obviously negligent. You should go to another one, even to an emergency room for abx.

there is no replacement for abx at this stage. there are abx you can get, I heard, on line w/out prescription. I haven't looked into that and cannot suggest how it is done or if it is legal.

[MomWithOCDSon]

Though in our situation there was no return of fever, the unwanted behaviors (anxiety, etc.) always ramped up when we ceased abx. In the end, our DS was on full dose abx for almost 2 years before we could successfully wean him off and not have a "rubber-band" effect in terms of his anxiety and other OCD behaviors returning full-strength.

 

It appears the medical community still has some catching up to do in terms of the strength and duration of abx therapy in the treatment of PANDAS. I know there's concern about creating resistant bacterial strains and similar issues, but there are both health and quality of life issues that should not be so quickly dismissed at the feet of those concerns. My DS was on abx for nearly 2 full years, straight. I just got an email from Beth Maloney which stated that Sammy (of "Saving Sammy: Curing the Boy Who Caught OCD") was on abx for 4 years.

 

Frankly, 14 days . . . even 30 days . . . of abx is NOT adequate or appropriate treatment for most cases of PANDAS. And any contention that it is or should be is just flat out ridiculous.

[sarojane]

Well went to Doc's office saw other pediatrician Strep still around! Dd was prescribed clindamycin, biocidin ts, lauricidin, oxylent. Going back in 10 days. I think this doc is a better fit.