Lydiasmum Posted April 18, 2015 Report Share Posted April 18, 2015 Hi all, I have had pressure angioedema for 15 years. It is horrible when it flares - anything pressing my skin causes huge deep swellings which really affects my quality of life, particularly as one of the worst affected areas are my feet. Apart from prescription antihistimines and high dose Vit D (I was negligible when tested), doctors haven't really been able to help. I have learnt that this condition can be caused by C1 inhibitor deficiency. I am going to ask to be tested. Apparently C1 inhibitor regulates the body's response to inflammation.... My DD7 has PANDAS. I am sure we are linked and I am wondering if I've passed this deficiency on to her. Does anyone out there think I might be on to something? Link to comment Share on other sites More sharing options...
kim Posted April 23, 2015 Report Share Posted April 23, 2015 lydiasmum, After reading this review, I would say YES (i have no medical background whaat so ever). http://emedicine.medscape.com/article/135604-overview#aw2aab6b2b1aa I think your post is important to this forum and hope you will update on any findings. Did the Dr. who is treating your DD have an opinion? Link to comment Share on other sites More sharing options...
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